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Dear Listfriends, Attentiooooooonnnn -----------Barb Blake-Krebs, Jeanette Fuhr, Marling McReynolds, Mary Yost, Barb Mallut, Jim Finn, Edie Luther, Mort Kondracke , David Lowenthal, Helen Mason, Darwin Hawkins, Joan Snyder, Gerry and Brig, Lincoln, Nebraska folks and many others.... RE: Today's probable TV appearance on CBS affiliate WGME, Portland, Maine I meant today, Monday, September 28th (NOT 27th) at 6 or 11 PM!! Los Angeles folks (Hi MaryYost and Barb Mallut!)-----what do you think about Hilary's suggestion about getting David Lowenthal (sp?) to join in calling local CBS stations?? Hey, David--I'm ready for you to do a FEATURE STORY about the lives of young, restless Parkinsonians!! and Mort--how about a PANEL of young parkinsonians for Roll Call?? Hollywood, Ho!! Ivan 48/12 (49 in November, 12th or 13th year of visible symptoms-- a close friend and I noticed foot-dragging and arm-swing reducing while walking, as early as age 36..... ^^^^^^WARM GREETINGS FROM^^^^^^^^^^^^^^^^^ Ivan Suzman 48/12 [log in to unmask] Portland, Maine Land of lighthouses 62 deg. F ******************************************************************** On Sat, 26 Sep 1998 14:34:44 -0400 Jed Blue <[log in to unmask]> writes: >What about David Lavinthal; he should carry some clout. Mr Lavinthal, >sir, if you're lurking out there, can you suggest a way to break >through this blockade? >Hilary Blue > >Ivan M Suzman wrote: >> >> Friends, >> >> I have just been told (9:55 PM) that my WGME-TV appearance is >> postponed til tomorrow, Monday, Sept. 27. It is re-scheduled for >either 6 >> or 11 PM, but that is subject to change, "depending on the breaking >> news." The news department editor CLAIMED that no (ZERO) requests >had >> arrived at (207) 797-9099 for the broadcast of my PD Golf TOurnament >> story on any other CBS TV station. >> >> Are they BLOWING US OFF?? The issue here is that the Parkinson's >> community, worldwide, still seems to be in the shadow-world. >> >> This endless after-the-interview lobbying makes me feel like we >PWP's >> have little clout. Not enough political power as a COMMUNITY. >> >> I don't know how much impact we with PD have--but it's not enough >to >> prevent Jim Finn, Barb Mallut and others among us from experiencing >this >> awful waiting game after having been filmed-and the ORDEALS that we >go >> through are not understood--and then we're never aired at all. >> >> . Edie Luther-let's check in with you- are you doing better than us >in >> getting on TV in Baltimore this week? Is your airdate still >September >> 28?? >> >> Barbara Blake-Krebs and Marling McReynolds--can you use your >radio >> success to talk about our TV INVISIBILITY, on the radio programming >> available to you? >> >> Again, if anyone convinces your CBS-affiliated TV station to >phone or >> fax WGME-TV, Channel 13 Sports News, Portland, Maine, and put it on >the >> satellite, you will see it in your area. >> >> Maybe some of you in the media, like Mort Kondracke, could help? >> >> Can someone forward this to Mort? I don't have an e-mail address for >him >> at his Washington, D.C. office, Could it be [log in to unmask] >