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This really struck me. This description of Bob's Father's, and now apparently Ellen's husband's , movements fits me to a T ! Is this, does anyone know, another form of PD, a rigid type Vs a tremor type, or something more? Or less. Or worse? -----Original Message----- From: Ellen Peck <[log in to unmask]> To: Multiple recipients of list PARKINSN <[log in to unmask]> Date: Tuesday, September 29, 1998 5:31 PM Subject: Re: Parkinsonism >Bob Johmson wrote: > >>My father.....has >>trouble walking, lurching forward, slightly bent at the trunk as if running >>after his centre of gravity. THIS IS THE REASON FO R MY INTRACTABLE BACK PAIN. I THIINK.. THE BODY IS NOT MEANT TO BE POSTURED THIS WAY He has been taking Sinemet in increasing >>dosages for over a year without apparent relief. In fact he now shuffles >>around his house with greater difficulty, stumbling and stutter-stepping >>with less control as time goes by. SAME HERE - ALSO FIRST PERMAX (HEAVY DOSE), NOW MIRAPEX (THE MAX DOSE - 4.5 MG/DAY) AND TASMAR (JUST STARTED WITH 3, 1 MG TABs/ DAY). I HAVE TO SAY I FEEL WORSE WHEN I AM REAL LATE TAKING THE MEDS, BUT NO REAL ON & OFFS >>A CT scan and a MRI have not revealed to his neurologist the reason(s) >>for his physical/neurological problem. > > >Well, Bob, my husband (79/1) has had the same experience. > >> >>Any thoughts or advice on my Dad's behalf would be greatly >>appreciated. >> >>Thank you. >> >>Bob Johnson > >We go to Dr. Hauser in the Movement Disorder Clinic in Tampa every four >months, but he doesn't seem to know what to do for my husband who does not >respond as expected to Sinemet. Permax and Tasmar were initiated and >stopped quickly due to disastrous side effects. >I HAVE NEVER, THO, HAD ANY SIDE EFFECTS, BUT THAT IS IRRELVENT IF THET DON'T DO MUCH! >The Sinemet seems to improve the drooling and hand tremor a little bit, but >increasing Sinemet over two 25/100 per day brings on loss of appetite and >dizziness. > >Bob, If you find anything that helps, please let us know. > >Anybody out there have any suggestions? > >Ellen Peck PLEASE B. Bruce Anderson (52, 4) Schooley's Mtn., NJ [log in to unmask]