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What about David Lavinthal; he should carry some clout. Mr Lavinthal,
sir, if you're lurking out there, can you suggest a way  to break
through this blockade?
Hilary Blue

Ivan M Suzman wrote:
>
> Friends,
>
>     I have just been told (9:55 PM) that my WGME-TV appearance is
> postponed til tomorrow, Monday, Sept. 27. It is re-scheduled for either 6
> or 11 PM, but that is subject to change, "depending on the  breaking
> news." The news department editor CLAIMED that no (ZERO) requests had
> arrived at (207) 797-9099 for the broadcast of my PD Golf TOurnament
> story on any other CBS TV station.
>
>     Are they BLOWING US OFF?? The issue here is that the Parkinson's
> community, worldwide, still seems to be in the shadow-world.
>
>    This endless after-the-interview lobbying makes me feel like we PWP's
> have little clout.  Not enough political power as a COMMUNITY.
>
>    I don't know how much impact we with PD have--but it's not enough to
> prevent Jim Finn, Barb Mallut and others among us from experiencing this
> awful waiting game after having been filmed-and the ORDEALS that we go
> through are not understood--and then we're never aired at all.
>
> .  Edie Luther-let's check in with you- are you doing better than us in
> getting on TV in Baltimore this week? Is your airdate still September
> 28??
>
>    Barbara Blake-Krebs and Marling McReynolds--can you use your radio
> success to talk about our TV INVISIBILITY, on the radio programming
> available to you?
>
>   Again, if anyone convinces your CBS-affiliated  TV station to phone or
> fax WGME-TV, Channel 13 Sports News, Portland, Maine, and put it on the
> satellite, you will see it in your area.
>
> Maybe some of you in the media, like Mort Kondracke, could help?
>
> Can someone forward this to Mort? I don't have an e-mail address for him
> at his Washington, D.C. office,  Could it be [log in to unmask]