 |
 |
Opinion: Believe it important for the sake of research (and therefore, diagnosis and cure) to indicate when symptoms first appeared, to the best of our ability. Would like to see current age/diagnosed age/first noticed symtoms age. Name and town is a good idea, too. :) Sharon Starr Florence, AZ My mom (Rae) (lives with us) is the pwp: 74/50/45 -----Original Message----- From: Hawkins, Darwin <[log in to unmask]> To: Multiple recipients of list PARKINSN <[log in to unmask]> Date: Monday, October 05, 1998 8:16 AM Subject: Re: Identification >Alright people, let's get serious and realize the situation some of us >older folks are in. I have a hard time remembering how I was feeling >last week, much less how many years symptoms would come and go before I >was diagnosed. > >We are getting entirely too "cutesy" with a lot of the repetitive info >such as signatures and ID's. > >Go back and read the post a few months ago about how many PIE members it >takes to change a light bulb. > >Should we now add info on how long the bulb burned before blinking out >(would have had to witnessed the event)? Or just note the time when >first noticed that the bulb was burned out? > >How long was the bulb burned out before someone got around to changing >it? > >How long was the new bulb just sitting in the cabinet before being >called into service? > >Do a statistical analysis as to the frequency of burnout at each >location? > >All this above has been with tongue in cheek! I do feel that age and yrs >since dx is sufficient for me. I did like someone's idea that year of >birth and year of diagnosis would be a good alternative to age and yrs >since (requires me to remember to change those numbers every year). On >second thought, maybe that's good to have to change those each year, >reminds me of the urgency to get something done about a cure. Wouldn't >it be great to be able to sign off with: > >Darwin Hawkins 62/6/1 > >where 62 is my age two years from now >5 would be the elapsed number of years of enduring PD after diagnosis. >1 would be the number of years since completely cured. >