The discussion regarding mention of the time when first symptoms can be
identified has some technical merit, I believe. The date on which we
were diagnosed is really just another point on the chart which we use to
measure our decline, and depends on such a lot of variable factors, (not
least the question of the skill of the particular specialist making the
diagnosis).
The 'Time from first symptoms' is perhaps in some ways more significant
than the diagnosis point, and I would support its inclusion. I suppose
that this discussion is of more relevance to those with slow progression.
- this raises the interesting possibility that it will tend to separate
the long-term from the older onset members, which may be of interest to
those studying the statistical distribution of PD.
Of course, 20/20 hindsight is not totally reliable, but I like it better
out in the open, rather than hidden away.
Just to be quite clear that I understand the proposal; I assume it to
be :
Age Now /
Years since diagnosis /
years from first symptoms to diagnosis /
--
Brian Collins <[log in to unmask]>
58/19/6
