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hi hans the more i looked around for an answer to your question about the name of our list the more confused i got so i went directly to the source: barb patterson's web-page on the People With Parkinson's WebRing and i thought it worth repeating here from Barb Patterson's web-site: http://www.newcountry.nu/pd/members/barbp/barbp.htm ============================ The Parkinsn Information Exchange Network (PIEN) was started on November 8, 1993 by Judy Norris, University of Toronto, and me (co-owners) in response to an "unmet need" for this service. There are now more than 1600 members from more than thirty- two countries. Fifty-two of the first one hundred members remain on the list. We are people who have been diagnosed with Parkinson's and who are also husbands, wives, parents, grandparents, lawyers, artists, writers, poets, musicians, teachers, professors, nurses, doctors, psychiatrists, neurologists, surgeons, engineers, laborers, secretaries and an ex-CIA agent. We are family caregivers/carers of people diagnosed with Parkinson's. We are professional caregivers including nursing home workers, physiotherapists, speech therapists, neuro-team members, doctors, nurses and researchers. We are educators, professors and students. We are political activists and pharmaceutical company representatives and media representatives. We are "list exploders" which relay PIEN messages to other groups. The University of Toronto is the host for PIEN, providing free of charge, the hardware and software to manage the membership list and distribute messages. Membership is open and free to all. The only cost involved is for whatever Internet service provider a member uses to read an average of twenty-five messages a day. Each message posted to the list by a member is automatically distributed to every member of the PIEN by the "Listserver" software. The position of "listowner" is an unpaid, volunteer one. Other volunteers regularly post instructions on how to interact with the Listserver and search the archives which contain every message ever posted to the PIEN including many scientific publications. The archives are a "unique resource" of information about living and working with Parkinson's. ============================ hope this is helpful, hans janet ps to all and sundry - do you have a web-page? is it a link on the People With Parkinson's WebRing? mine is barb's is camilla's is jerry finch's is cyber-dad-don's is the national parkinson foundation's is if yours isn't, it should be! check out our web-ring-master jerry finch at: http://www.newcountry.nu/pd/PWPinfo.htm or e-mail him at: [log in to unmask] janet paterson - 51/10 - almonte/ontario/canada http://www.newcountry.nu/pd/members/janet/ [log in to unmask]