Print

Print


More information will be distributed as soon as it is available.  Please call
the Parkinson's Action Network with you questions and comments: (800)
850-4726.  From Mike Claeys, Parkinsons Action Network
Following is a brief update on the status of fiscal year 1999 Appropriations
for the National Institutes of Health (NIH), and more specifically,
Parkinson's research funding.



The House and Senate are expected to vote on the fiscal year 1999 omnibus
spending bill on Wednesday, October 21.  The government is funded through
midnight Wednesday, and the President is expected to that evening from
California to sign the massive legislation.  Included in the omnibus bill are
the Labor-HHS Appropriations bill and its accompanying report.



The Labor-HHS bill is expected to contain a robust $2 billion (14.7%) increase
in the overall NIH budget.  Sustained for five years, this rate of increase
would double the NIH budget.



Although Parkinson's-focused research is certain to increase in fiscal 1999,
the exact amount cannot be determined at this point.  Ensuring the highest
level of Parkinson's-focused research will require continued scrutiny of and
dialogue with the NIH, both by Congress and the Parkinson's community.



The report accompanying the Labor-HHS bill is expected to contain several
references to Parkinson's research funding, including additional language
added in the last few weeks.  Also anticipated to be added to the
Congressional Record accompanying the passage of the omnibus bill is a verbal
exchange (known as a "colloquy") among several Senators, including Udall Act
champions John McCain (R-AZ) and Paul Wellstone (D-MN), who spoke in favor of
increasing Parkinson's research funding in concordance with the Udall Act.
The Network will publish the report language and the Senate colloquy in its
entirety as soon as the omnibus bill is signed into law and made available to
the public.  This is expected to be later this week.



Lastly, it is important to note the strong contribution made by a bipartisan
group of Senators who have come forward in recent weeks to actively work to
fulfill the mandate of the Udall Act.  Led by Labor-HHS Appropriations
Subcommittee members Thad Cochran (R-MS) and Larry Craig (R-ID), thirteen
Senators signed letters to Labor-HHS Appropriations Subcommittee Chair Arlen
Specter (R-PA) encouraging inclusion of stronger, more directive language in
the final Labor-HHS Conference Report.  This language is meant to compel NIH
to follow the mandate of the Udall Act by devoting $100 million in research
focused specifically on Parkinson's in fiscal 1999.



While it remains to be seen precisely how much research funding goes to
Parkinson's in 1999, the Parkinson's community will surely reap great benefits
from the active support of knowledgeable and influential Senators like
Cochran, Craig and the others.  These new champions, combined with previous
Udall Act supporters like Senators McCain and Wellstone and Congressmen Upton
and Waxman, have joined the cause as a result of the tremendous grassroots
efforts of Parkinson's advocates in their states and around the country.  The
entire Parkinson's community should be proud of this year's accomplishments
both in terms of legislative successes, and potentially more important, the
increase visibility and awareness of Parkinson's on Capitol Hill.



More information will be distributed as soon as it is available.  Please call
the Parkinson's Action Network with you questions and comments: (800)
850-4726.