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OCTOBER SYMPOSIUM WELL ATTENDED
The Parkinson's Disease Symposium Moving Toward the Cure was held October
10 near Baltimore. There were about three hundred in attendance.
Keynote speaker Paul Silverstein, M.D., of the University of Minnesota, was
very encouraging about recent advancements in Parkinson's treatment. He was
followed by exercise tips from Catherine MacRae, a multiple sclerosis
patient herself, who produced the Gentle Fitness exercise video. Our
Stephen Reich, M.D., of Johns Hopkins told us about newest surgical
therapy.

Mrs. Susan Imke, an R.N. and obviously a Texan, discussed adjustment to
chronic disease. It was hilarious. Making a chronic disease funny for those
who have one takes real skill, talent, and work. She had all three. My
favorite was her simplified definition of idiopathic. Idiopathic means the
doctors are idiots and the patients are pathetic.

The highlight of the symposium was an unofficial announcement that there
will be three Udall Parkinson's Disease Centers of Excellence. Each will be
funded by the federal government with a million dollars per year for five
years. The
three Udall Centers of Excellence will be at Massachusetts General Hospital
in Boston, Emory University Hospital in Atlanta, and, of course, Johns
Hopkins University Hospital in Baltimore. The federal grant is not yet
official as
the Omnibus Spending Bill has not been signed into law, but there is little
chance that the spending bill will not become official in the very near
future. Our lobbying is about to pay off!

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