 |
 |
Ivan, I want you to know that it was reading your posts about the availability of your video tape of your interview on the Maine talk show in early 1998, that was the first seed implanted in my brain that perhaps I could be an advocate for Parkinson's. At that time, as a newly dx pwp, I knew so little about the disease or what long term life w/pd could be about. As I learned, lurked and eventually participated on list, I looked forward to your posts, and was encouraged by your positive outlook and saddened when you were not well or had problems due to pd, caregiver problems, etc. Now, I, too, can claim that I'm an advocate for Parkinson's and feel proud that my senator from MO, "Kit" Bond has taken the step with the other 10 senators to address the issue of the Udall act being carried out as originally stated. I ask for Bond's staff member, Joe Pierly, when I call the DC office and Joe has talked with Michael Claeys of PAN and that helped clarify for Bond just how important the letter to Sen. Specter of the appropriations committee was/is. As a community, we pwp and our friends, families, and concerned other persons must keep reminding those who represent us in DC that we are watching and observing what is promised and what is actually done. A democractic republic is only as strong as it's individual citizens. We have to be informed and keep informing others of our needs re:Parkinson's research. Jeanette Fuhr 48/11mo. <[log in to unmask]>