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Tom, where do you live? It would help to know how much travel expense we would need to reimburse you for. Thanks for the suggestion. Bev Brown On Wed, 28 Oct 1998 08:23:47 EST Tom Kelly <[log in to unmask]> writes: >Hi Guys! > > I've been on the list for only a wek and already my personal >filling cabinet >is full. What a resource and what a group of truly wonderful people. >But >then we PWPs are truly wonderful people. I tell Pamala, my bride that >everyday. ( I certainly don't want her to forget ) > This message is for all you support group leaders. If you >need a speaker for >your meetings I would like you to consider my wife and I. We have >presented >the patient's perspective at eight regional meetings of support groups >convened by the UPF as the result of a grant. > God has given both Pamala and I the ability to communicate >effectively and we >love to use that gift. I use as the basis of my talk, seven words >that I have >used to fight PD over the last twenty years (diagnosed at 30). These >words, >attitude, knowledge, determination, fear, depression, humor and love >form the >foundation of how I have dealt with the PD. Pamala speaks to the PWP >on >behalf of the care partners saying things they have always wanted to >say but >were afraid of hurting their PWP and I conclude with a message for the >care >partners from the PWP. > We use a lot of humor and generally evoke a lot of tears as >well. Plus >selfishly Pam and enjoy meeting all the wonderful people. > We do this for a number of reasons. Certainly not to get rich >(we only need >travel expenses unless you have a really wealthy support group in >which case, >a substantial donation to the Kelly kids college fund will be >gratefully >accepted) Our principal reason is that if we can help even one PWP or >care >partner then we have fulfilled a commitment that we made to God for >his >goodness in giving me two very successful pallidotomies. If you need >a >reference call Jeanne Lee at the UPF in Chicago. > If you are interested either e-mail me or call at >309-682--6359 Thanks >