hi, are there any pd people around So. Oregon...Grants Pass maybe? any in the group here or do you know someone? Coleen :-) Missing Links adoption support group *So. Oregon* [log in to unmask] or [log in to unmask] 541-862-2226 http://www.barysoftware.com http://members.wbs.net/homepages/f/r/e/fredmom.html http://geocities.com/Heartland/Ridge/9923/adoption.html ******************************************** Oregon Adoptee Rights Initiative Measure 58 Our Birth Certificate: Our Right http://www.plumsite.com/oregon/ PO Box 353 Nehalem Oregon, 97131. Make checks payable to "Open 98" 1 800 262 5551/ [log in to unmask] ********************************************** Support T.I.E.S. visit: http://www.eyegive.com/html/ssi.cfm?CID=2903 What have YOU done for Oregon Lately???? ******************************************** -----Original Message----- From: judith richards <[log in to unmask]> To: Multiple recipients of list PARKINSN <[log in to unmask]> Date: Friday, October 30, 1998 2:53 PM Subject: Re: Newly dx'd PD >Barbara Mallut wrote: >> I'd like to see all newly diagnosed PWPs be contacted by another >> Parkie who will act as a contact person ...a tactful one... with >> answers to the myriads of questions the newby Parkie may have, and >> suggestions and hints on how best to adapt to the disease and to ease >> newly diagnosed into a support group sooner, rather than later. > > When a newly diagnosed young onset contacts the Parkinson office here, >they are invited to join our support group. If they are interested, they >are told that they will be called by one of the leaders. Then, either >Joe (co-leader) or I (whichever) call the new person and invite them to >meet us at our home. > This past summer we had two new couples here with the four of us - Joe >and his wife, Donna, and Al and myself. We have found that small >meetings like this make new PWP more comfortable prior to meeting the >whole group. > Sometimes they are not ready to join the group, but prefer to meet and >talk to someone one on one. In that case, Joe or I will be contacted to >set up a meeting. Joe has even met new PWP in a coffee shop - sort of >neutral territory. > There are contact people available to talk to older newly diagnosed PWP >and/or their spouses, too. > >> I suspect my experience was an extreme because of that one man, but >> it haunted me the whole time that I spent working up to going to the >> group again. > >I had a similar experience which is one of the reasons I like to invite >newbies here. > >Judith >-- >Judith Richards, London, Ontario, Canada ><[log in to unmask]> > ^^^ > \ / > \ | / Today’s Research > \\ | // ...Tomorrow’s Cure > \ | / > \|/ > ``````` >