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Hang in there, Ivan, we'll figure something out! Hilary Ivan M Suzman wrote: > > ^^^^^^WARM GREETINGS FROM^^^^^^^^^^^^^^^^^ > Ivan Suzman 48/12/9.5 [log in to unmask] > Portland, Maine Land of lighthouses 33 deg. F > > Hello everyone, > ******************************************************************** > I think the title explains what's happening to me--both good and not so > good. > DO the listMEMBERS WHO ARE GAY OR ARE PARENTS OF A GAY SON have any > ideas?? > > Searching for night time coverage --too many long off periods making > things UNsteady. > > Maybe someone in NJersey could drive or fly Jay Forys up here. and maybe > he could be paid from somewhere? > He's phoned me 4 times in 2 days, very concerned. He was in DC for the > entire Parkinson's Forum, helping me to advocate and get around due to my > condition. > > Due to low pay available,I can't seem to attract a Sunday daytime > caregiver either > > Nurse visits have not been allowed. The Nursing agency doesn't seem to > know what a 24 hour OFF period does!!!!!!!!!!! > > I am always disturbed by the lack of YOUNG Parkinson's known by the > general public. THe Parade Magazine is VERY helpful, but the public > images of YOUNG Parkinson's people are basically nonexistent. > > I want to be WELL and do lots more work for all of us! > Very uncertain what to do-- > > IVAN