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Susan,
I've been reading your notes about your mother, and now I think I have to add
my two cents worth.  All Janet says is true.  Your mother may have a
Parkinson's Plus condition such as Shy-Drager syndrome or MSA.  Very few
Neurologists are able to figure this out and certainly even fewer GP's.
Several years ago, when Ken had had PD for 10 years, he began to fall and pass
out and to be incontinent and all the rest.  His then Neurologist said it was
balance problems.  He questioned the diagnosis of PD and took him off meds for
a while.  When Ken got awful, he admitted that he had PD and put him back on
sinemet and said there was nothing else to do; it was just PD progression.
Then Ken fell and hit his head and was hospitalized in another town with
another Neurologist who was better informed and we got the diagnosis of Shy-
Drager Syndrome along with the PD.  That was 7 years ago, and with the help of
a Neurologist who is more knowledgeable and willing to listen and learn, Ken
is still with us.  He takes many meds, both for SDS and for PD and he takes
Aricept for the dementia associated with all this.  I have full-time help for
him, but he goes to the gym with his helper 3X per week, and we go to support
groups together as well as on trips in our trailer.  We even go out to dinner
with friends occasionally.  And the Neurologist we had seven years ago said
there was nothing we could do except leave him in the nursing home!  I am
certainly not saying that you will have the same results for your mother, but
you need to get another medical opinion before you give up on her.  The
nursing home Ken was in for a while had a van that could take the patients to
their doctors. I suspect that your mother's nursing home has the same.  If it
were my mother, and there was no other way, I think I would explore the
possibility of an ambulance or some other means of medical transport to the
movement disorder specialist.
I hope I haven't come on too strong in this, but our success through
persistence has made me a believer in the right doctor.  You're love for your
mother comes through in all your notes and your frustration is very clear.  I
hope you find what you need.
Barbara Smith,cg/Ken/70/17