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Wow! Did that ever make me stop in my tracks. You are so right.We tend to go our own merry ( or not so merry) ways, never stopping to think who has gone before us to make that way possible. Does Mo Udall know about us, about the wonderful thigs that are being done in his mame. I dont think we will ever know the answer to that. To assume that he does is almost more frightening than the alternative - Is that great mind and intellect lying a prisoner in that wreck of a body, unable to communicate with us. Oh, too horrible to contemplate. I start to fear my own future even more - and that maybe is the reason we don't stop to think, and thank Mo Udall. Shame on us. Maryhelen, you are right. We owe him and his family a debt of gratitude, for giving us their name, which has become synonymous with HOpe. G-d and the NIH willing, I think that we are on the verge of great discoveries, and that the cure is out there, jut beyond our reach, waiting to be discovered. Soon, I hope, very soon. Thanks, maryhelen for awakening my conscience Hilary Blue ------------------------------------------------------------------------ Maryhelen Davila wrote: > > I for one am not as worried about being the target for death without > permission, as I am about being kept alive against my will - imprisoned by my > own body - like Mo Udall has been foe several years now. And like so many > PWP' are that we don't even know. I agree, our best opportunity, no..'our > greatest need' is to cling to any little bit of respect we can - our human > dignity, from the grip of PD for as long as we can. The clock is ticking.. We > have not done anything to deserve getting PD. But the PD monster seems to > enjoy stripping us, inch by inch,of our human dignity, encouraging non-PD > society to treat us as less worthy, or we are passed over, or put away--- > there is a oss of respect for the life of a PWP. > > We must coninue to try to educate others about the disease. However, > consequences of societal rejection are not limited to rejection by the non-PD > community. Some of us 'Udall Bill Advocates" have - not meaning to - exploited > "one of our own". So many of us, somehow managed to do alot of things in the > name of "the Udall Bill".But it seems, not meaning to, we have forgotten Mo > Udall the person. Mo Udall -. It took him his lifetime to earn his good > reputation, his "good name" --- his good name that his family permitted us to > use - when we had no one else, with whom the public could relate, who would > stand by us, when we had little reason for hope. I suppose this is just a > long-winded way of asking "What are we doing to express our respect and > gratitude to Mo Udall and his family for all they've done. The gift of hope is > a gift of life to some of us.. Mo Udall and his family deserve letters of > thanks from us. If permited, some of us might individually visit Mo in his > hospital room. Maybe, just maybe, he might hear us. He might somehow > understand that we are grateful to him and to his family for having given us > an avenue to take, a means to fight back, to organize, to reach out and to > beecome friends with our 'parkie' family, and to respect each other and > understand each other when the non-PD world doesm't anymore. Maybe, just > maybe, we can show our respect and our love for a man most of us have never > met.. but to whom we owe so much. > > Maryhelen