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One possible answer is the establishment of group homes - shared assisted living facilities. They do not even have ot be formal institutionalized arrangements. If several young PWPs get together, and set up house together, it would be beneficial to all concerned. The legal niceties would have to be worked out, but think of it. We all have different timetables for our offs and ons, so would probably be able to assist each other through difficult times. And we would share caregivers, bringing down the cost, and the number of cgs, quite considerable for each pwp. And we would be of an age, and more compatible, than if we were thrown to the lions in a nursing home or similar. Any suggestions? Hilary Blue ----------------------------------------------------------------------- Ivan M Suzman wrote: > > Dear LIstmembers, > > Out of the horrific three-week ordeal I have just gone through emerges, > in my humble opinion, the central, unmet challenge that many PWP's like > me also face: our continuous VULNERABILITY TO INSTITUTIONALIZATION if we > are single and living either on social security or low-income, and > lacking adequate support. > > I represent a huge class of people with Parkinson's. How do we find > adequate caregiver funds? > Where are the corporate programs and foundations that could support > salaries for caregivers? > How do we access these funds, or public funds like Medicaid, so that > we can pay caregivers to come to our apartments or homes, and avoid > institutionalization due to lack of accessible care providers? > > IF you happen to be low-income, you are always in danger. > > ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > Ivan Suzman 48/39/36 [log in to unmask] :-) > Portland, Maine land of lighthouses deg. F :-) > ******************************************************************** > >