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This is a health issue of great importance to all women.  Forgive me for using the list to spread the word.  Leta 53/53




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Subject: A very important heath related message!
   Date: Mon, 9 Nov 1998 09:59:05 EST

Subject:  An Important Message

Here is a message I received and felt I had to forward.

This is very sobering, but I thought it was worth passing on...(written
by an EDS employee in Plano).
This is a very important message, please forward this, so that we can stay
informed.

FOR THE MEN ON THIS LIST, PLEASE PASS ON TO THE SPECIAL LADIES IN YOUR LIFE.

THIS IS VERY IMPORTANT INFORMATION.  READ IT AND FORWARD IT TO
EVERYBODY!!!

>> As all of you know, I have Primary Peritoneal Cancer.  This cancer has
only recently been identified as its OWN type of cancer; but it is,
essentially,
Ovarian Cancer.  Both types of cancer are diagnosed in the  same way (with
the "tumor marker" CA-125 blood test), and they are treated  in the same way
(surgery to remove the primary tumor and then chemotherapy with Taxol and
Carboplatin).

Having gone through this ordeal, I want to save others from the same fate.
That is why I am sending this message to you and hope you will print it and
give it or send it via e-mail to everybody you know.

One thing I have learned is that each of us must take TOTAL responsibility
for our own health care.  I thought I had done that because I always had an
annual physical, had my annual mammogram and PAP smear, did monthly  Self
Breast Exam, went to the dentist at least twice/year, etc.  I even insisted on
a sigmoidoscopy and a bone density test last year.

When I had a total hysterectomy in 1993, I thought that I did not have to
worry about getting any of the female reproductive organ cancers. LITTLE  DID
I KNOW! I don't have ovaries (and they were HEALTHY when they were removed!),
but I have what is essentially ovarian cancer.  Strange, isn't it?

These are just SOME of the things our Doctors never tell us.

ONE OUT OF EVERY 55 WOMEN WILL GET OVARIAN OR PRIMARY PERITONEAL  CANCER!  THE
"CLASSIC" SYMPTOMS ARE AN ABDOMEN THAT RATHER SUDDENLY ENLARGES AND
CONSTIPATION AND/OR DIARRHEA.

I had these classic symptoms and went to the Doctor.  Because these
symptoms seemed to be "abdominal," I went to a gastroenterologist.  He
ran  tests that were designed to determine whether there was a bacterial
infection; these tests were negative, and I was diagnosed with "Irritable
Bowel Syndrome."  I guess I would have accepted this diagnosis had it
not  been for my enlarged abdomen.  I swear to you, it looked like I was 4-5
months pregnant!  I, therefore, insisted on more tests.  They took an X-Ray
of my abdomen; it was negative.  I was, again, assured that I had
Irritable Bowel Syndrome and was encouraged to go on my scheduled  month-
long trip to Europe.  I couldn't wear any of my slacks or shorts  because I
couldn't get them buttoned, and I KNEW something was radically  wrong.  I
INSISTED on more tests, and they (reluctantly) scheduled me for  a CT-Scan
(just to shut me up, I think).  This is what I mean by taking charge of our
own health care.

The CT-Scan showed a lot of fluid in my abdomen (NOT normal!).  Needless
to say, I had to cancel my trip and have FIVE POUNDS of fluid drawn off at the
hospital (not a pleasant procedure, I assure you, but NOTHING compared  to
what was ahead of me).  Tests revealed cancer cells in the fluid.

Finally, finally, finally, the Doctor ran a CA-125 blood test and I was
properly  diagnosed.

I HAD THE CLASSIC SYMPTOMS FOR OVARIAN CANCER AND, YET, THIS SIMPLE CA-125
BLOOD TEST HAD NEVER BEEN RUN ON ME ... NOT AS PART OF MY ANNUAL PHYSICAL EXAM
AND NOT WHEN I WAS SYMPTOMATIC.  THIS IS AN INEXPENSIVE AND SIMPLE BLOOD
TEST!!!

PLEASE, PLEASE, P-L-E-A-S-E TELL ALL YOUR FEMALE FRIENDS AND RELATIVES TO
INSIST ON A CA-125 BLOOD TEST EVERY YEAR AS PART OF THEIR ANNUAL PHYSICAL
EXAMS.  BE FOREWARNED THAT THEIR DOCTORS MIGHT TRY TO TALK THEM OUT OF IT,
SAYING "IT ISN'T NECESSARY."  BELIEVE ME, HAD I KNOWN THEN WHAT I KNOW NOW, WE
WOULD HAVE CAUGHT MY CANCER MUCH EARLIER (BEFORE IT WAS A STAGE 3
CANCER)!!! INSIST ON THE CA-125 BLOOD TEST; DON'T TAKE "NO" FOR AN ANSWER.

THE NORMAL RANGE FOR A CA-125 BLOOD TEST IS BETWEEN ZERO AND 35.  (MINE WAS
754 ... THAT'S RIGHT, 754!)  IF THE NUMBER IS SLIGHTLY ELEVATED, YOU  CAN HAVE
ANOTHER ONE DONE IN THREE OR SIX MONTHS AND KEEP A CLOSE EYE ON  IT JUST  LIKE
WOMEN DO WHEN THEY HAVE FIBROID TUMORS OR WHEN MEN HAVE A  SLIGHTLY ELEVATED
PSA TEST (PROSTATE SPECIFIC ANTIGENS) THAT HELPS DIAGNOSE PROSTATE CANCER.
HAVING THE CA-125 TEST DONE ANNUALLY CAN ALERT
YOU EARLY, AND THAT'S THE GOAL IN DIAGNOSING ANY TYPE OF CANCER -- CATCH  IT
EARLY.

I hope I haven't bored you with all of this.  But I hope I HAVE scared you
enough to motivate you to action.  Do YOU know 55 women?  If so, at least one
of them will have this VERY AGGRESSIVE cancer -- and maybe, just
maybe, it will be YOU.  I hope not.

Please, go to your Doctor THIS WEEK and insist on a CA-125 test and have
one EVERY YEAR for the rest of your life.  And forward this message to every
woman you know and tell all of your female family members and friends.  As the
Nike ads say, "JUST DO IT!"

Please don't think youth will protect you, either.  Though the median age
for this cancer is 56 (and, guess what, I'm exactly 56), women as young as
22 have it.  Age is not a factor.

Thank you for your time.  My best wishes for your continued good health.
Carolyn Benivegna

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