 |
 |
"Nancy D. Mullen" wrote: > Barbara > Call your doctor or fax your letter to her maybe with questions about when > the headaches started getting worse again, maybe with a information check > off sheet. > > Here is what I did when I got the continuous headaches. I Faxed a > checklist that looked similar to this: > > --------------------------------------------------------------------------------------------------------------------------- > > NANCY MULLEIN B.D.- 8/19/58 > PHONE NUMBER > ADDRESS > > HEADACHE ED- INDOMETHICIN 7 AM, 1 PM, 7 PM > > REGULAR MEDS ------(LIST ALL MEDS) > > SINEMET 25/250 7AM, 10AM, 1AM, 4PM,7PM > MIRAPEX .125 9AM, ........ > > > *****BARBARA -- the date, med time,hdache time ,.....etc. are on one > line. Sorry I could not fit them that way here.. > DATE || MED TIME || HD.ACHE TIME || LASTED || ACTIVITY || > 11/16/98 7AM 5AM 2HRS > SAT UP > > > AFTER SLEEP > B.P. || || HRS/SLEPT || DIET POP(BARB:) > UR BLOOD PRESSURE 12 AM- 5 AM > > > HEADACHE > > 1.I went to a neurologist that t specialized in headaches. and he > prescribed the Indomethicin. > > 2.As for neurontin , I was prescribed it for the myoclonic jerking > episodes. Worked well for ME at first, but it caused severe water > retention ( ie.emergency room) and was taken off of it- --- NOT > RECOMMENDING FOR ANYONE --just my reaction > > 3. My causes--- > a. spaced my activity and nap(s). walked ,then, > b. My headache med and blood pressure med did not interact well > c sleep with my head and feet elevated to what works for ME > > 4..IF headaches start feeling pass MY pain level (which they began to > but not as bad as before) > I start the check list again cause MAYBE I changed my daily > routine,meds, etc.(which was changed). > > E. I FAX AND CALL MY DOCTOR AGAIN > F. WHEN THE HEADACHE GOES AWAY ,I REST ABIT , THEN MY MY H.H.A. > ASSISTS ME TO BEGIN ANOTHER DAY:) > > > ***** Controlling my headaches seemed to take forever!! I was to the > point of biting my pillow to keep from screaming and crying.---you're > right the pain whew !!! > > BACKACHE > 1. went to Physical therapy for evaluation. > 2. wrong posture ---leaning too far forward , shoulders sorta humped over, > shoes needed excellent support ( and had to look great too:), putting my > weight on my walker (3 wheel ,brakes, winnie walker), cane - walking top > of my body bent to the side, hips were weak, > Posture just totally wrong. > WHAT I Chose to do- > ----work on my posture, a friend of mine gave me a pair of shoes that she > bought and never wore which fit me, work with the Physical therapist. > > I know this may look lengthy but it works for me. Ask ur doc about what > she thinks are causing the headaches and for P.T. I will typed the check > off list if u want me too. There is a program that u can type the info > into, I think it is MS office or Excel. I will check . > > Nancy:) / Angel_3 > > > BARBARA DAVIS wrote: > >> I was wondering if anyone headaches the way I do. I was diagnosed with >> Parkinson's of August of 93. I never really had headaches before that, >> may be one on two a year.in funny way I made by peoplewho had >> headaches. I started getting headaches about 1995 they came one slow >> and in the notice them. This time on, they got less. The doctors need >> mean this in a lead that. If not work. I am taking now Neurontn 3 >> -300mg a day now. I do not think they were working at first . The >> doctor cut the amounts I was taking, I noticed it will getting worse >> again.This is how my head feels like. I wake up with a headache 99 >> percent of the time. on average they it will take my head two hours >> before pillow halfway decent. when it is aching I have a tight cap on >> my head. Team needles , sweating in my head within my head, at the >> same time it could be burning. My face has a headache,. My head is >> going to explode like last nightI had a back. I have had the back ack >> for six days now. the last time I had a back like this was at least six >> years ago. As a strategy saying, my hair and my back of going to the >> same time .one good thing was Parkinson's was not too bad yesterday. By >> the end of night I was crying because my head was killing me. and I'm >> back was bothering me .I was crying and Praying to God to help me. Last >> night I cannot take the pain no more. I wish I was dead. That's how >> they had my head was. My head has not been bad. at leastsix months to a >> year. That I wanted to die.Barbara Davis >