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Ivan, m'dear..... Have you considered advertising for a PARKIE room mate to SHARE the cost and services of a hired caregiver? With both of you combining (doubling?) the pool of funds available for a caregiver, while ya'd have to share the assistance, that'd at least be a reasonably well paid caregiver (all things considered). Barb Mallut [log in to unmask] -----Original Message----- From: Ivan M Suzman <[log in to unmask]> To: Multiple recipients of list PARKINSN <[log in to unmask]> Date: Thursday, November 26, 1998 3:45 AM Subject: Medicaid pays caregivers only $9.00 for ENTIRE night >Dear list, > >Hi from the rocky Atlantic coastline! May I please have just a few >moments of your attention? > > I have worsening PD, and lack sources of overnight caregiver (CG) pay (I >am on social security). Hopefully, other PWP's will benefit from knowing >about my situation. > >I just don't know what more to do about locating a caregiver to stay >overnight. Medicaid here pays only $9.00 to a CG who is here throughout >the ENTIRE night - not $9.00/hour! So a CG who needs a place to live at >no cost is the only possibility. Maybe I should sell quickly and move >away to a small apartment. I could try to get that adapted to my needs >somewhat. But it seems so unlikely I can ever live independently again. >I could use the house proceeds for a while to hire someone. That might >buy a little CG time...but how much? There are many CG ads posted, but >no success after 6 months of trying. > > The repetitive off-periods after dark, are too much for them to handle, >and so I get temporary care. Also, it upsets them to see that I am >getting pain deep down my ear canals and neck and jaw area every time I >go into an off-period, along with stiff painful legs and killer toe >cramps.. I function surprisingly well when I'm on, even drive around on >errands, which fools people.. I am wearing a wool cap in the house, as >cold just worsens the pain extremely. > >Any thoughts would be appreciated. But forget about nursing homes. I am >too young, and my "assisted living center" is also my "adapted for >Parkinson's" center -- my own house -- for now anyway. > >Maybe I'm too stubborn for my own good. I don't know. > >Thank you > >Ivan Suzman 49/39/36 >