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i like that!! ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 48/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses deg. F :-) ******************************************************************** On Fri, 27 Nov 1998 00:06:54 -0800 Barb_MSN <[log in to unmask]> writes: >Ivan, m'dear..... Have you considered advertising for a PARKIE room >mate to SHARE the cost and services of a hired caregiver? With both >of you combining (doubling?) the pool of funds available for a >caregiver, while ya'd have to share the assistance, that'd at least >be a reasonably well paid caregiver (all things considered). > >Barb Mallut >[log in to unmask] > > > >-----Original Message----- >From: Ivan M Suzman <[log in to unmask]> >To: Multiple recipients of list PARKINSN ><[log in to unmask]> >Date: Thursday, November 26, 1998 3:45 AM >Subject: Medicaid pays caregivers only $9.00 for ENTIRE night > > >>Dear list, >> >>Hi from the rocky Atlantic coastline! May I please have just a few >>moments of your attention? >> >> I have worsening PD, and lack sources of overnight caregiver (CG) >pay (I >>am on social security). Hopefully, other PWP's will benefit from >knowing >>about my situation. >> >>I just don't know what more to do about locating a caregiver to stay >>overnight. Medicaid here pays only $9.00 to a CG who is here >throughout >>the ENTIRE night - not $9.00/hour! So a CG who needs a place to >live at >>no cost is the only possibility. Maybe I should sell quickly and >move >>away to a small apartment. I could try to get that adapted to my >needs >>somewhat. But it seems so unlikely I can ever live independently >again. >>I could use the house proceeds for a while to hire someone. That >might >>buy a little CG time...but how much? There are many CG ads posted, >but >>no success after 6 months of trying. >> >> The repetitive off-periods after dark, are too much for them to >handle, >>and so I get temporary care. Also, it upsets them to see that I am >>getting pain deep down my ear canals and neck and jaw area every >time I >>go into an off-period, along with stiff painful legs and killer toe >>cramps.. I function surprisingly well when I'm on, even drive >around on >>errands, which fools people.. I am wearing a wool cap in the house, >as >>cold just worsens the pain extremely. >> >>Any thoughts would be appreciated. But forget about nursing homes. >I am >>too young, and my "assisted living center" is also my "adapted for >>Parkinson's" center -- my own house -- for now anyway. >> >>Maybe I'm too stubborn for my own good. I don't know. >> >>Thank you >> >>Ivan Suzman 49/39/36 >> >