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Hilary Blue wrote: > > "The disease is you; you are the disease." > > Thus sayeth Jane Amy Blue, only six weeks since she left her home to live in > a group home under the guardianship of the foster care department. She no > longer speaks English; rather a sort of Psych 101, that is, on the rare > occasions that she actually talks to me. When I queried her therapist as to > where Jane Amy got this new philosophy from, I was told "she is an > intelligent child. She can think for herself". but that must have come up as > a response to therapy. After all, why did they take her away from me if > they didn't believe something like that themselves. > Can't they see I'm a human being. That I think, and read, and play the piano, > and cook, and sometimes even wash dishes. Can a disease do all those things? > No, I protest most vigorously. How can my child Believe that of me. Does she > really see me only in that way - as an embodiment of Parkinson's Disease? Who > taught her to sew, and to knit, and to sing, and to love music. Who gave her > her love of books, put her to bed at night, held her tight when she cried in > her sleep, put on a bandage when she scraped her knee, helped her with her > homework, listened to her practise her part in the play.... > No, it wasn't Parkinson's, it was I , the me that is real, the me that exists > inside of, and outside of the disease. The me that loves her and wants her > home with me, the me that keeps me going when my legs wobble, and my feet are > stuck to the ground, the me who has to go to court on Monday and smile > sweetly, while others determine whether my children will eventually come home > to live with me, the me who has to persuade that judge, that I am ME, and NOT > a disease !!! > > Hilary Blue (49,25,16)