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Hilary Blue wrote: > > I've signed on. Who will be next? Come on, we're all after the same goal - > maximum media exposure. So lets do it together.! > > Hilary Blue > > -------------------------------------------------------------------------------------------------- > > Ivan M Suzman wrote: > > > > Dear friends on the World Parkinson's Exchange List, > >> > > > I am "sponsoring" this listing, below, of TV-available PWP's and CG's > > . Please add your name, i.d., and address, if you are willing to either > > be seen live or be taped for broadcast on TV.. WE MUST BE VISIBLE,and > > join with Mr. Fox. Our stories must be heard. > >> > > > WE are the most knowledgeable people to explain the horrors and the > > hopes of living with Parkinson's Disease. WE can provide so much > > information and education as advocates for the research to cure PD. > > > > PLEASE sign on to the list below: > > > > LIST OF PWP'S AND CG'S WILLING TO APPEAR ON TV/ BE TAPED FOR > > BROADCAST > > > > NAME I.D. Address Country > > PWP or CG e-mail address > > > > 1. Ivan Suzman 49/39/36 Portland, Maine USA > > pwp [log in to unmask] > > 2. Hilary Blue 49/33/24 Annandale, Virginia USA > > 3. > > 4. > > 5. > > 6. > > 7. > > 8. > > 9. > > 10. > > 11. > > 12. > > 13. > > 14. > > 15. > > 16. > > 17. > > 18. > > 19. > > 20. > > ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > > Ivan Suzman 49/39/36 [log in to unmask] :-) > > Portland, Maine land of lighthouses 38 deg. F :-) > > ******************************************************************** > > > > >We also spoke a little about the issues arising from MJF going public, > > >especial how they affect YOPDs, and how the MJF publicity is painting > > >too rosy > > >a picture - but we agreed that increased public awareness can only > > >stimulate > > >more interest in finding a cure. And she said that she could not say > > >in > > >advance exactly what she would say on Monday but would have to be > > >guided by > > >what questions she was asked - but that she would always have our > > >interests at > > >heart. And that she would try and get as much into her 4 minutes as > > >possible. > > >Lets hope that she is successful. > > >Good Luck, Susan!! > > > > > >Hilary Blue (49,25,16) > > > > >Hilary Blue wrote: > > >>>> [log in to unmask] wrote: > > > > >> > Susan Reese, RN, LCSW-- Director of the American Parkinson's > > >Disease > > >> > Association's Young PD Information & Referral Center will be > > >interviewed on > > >> > the Today Show, Monday, November 30 about young-onset PD and the > > >APDA Center > > >> > created specifically to address the needs of the young person with > > >PD.