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sign me on Leta Anderson 53/53/38 Lakewood, CO [log in to unmask] ---David Moreland <[log in to unmask]> wrote: > > At 01:31 AM 11/29/98 -0500, you wrote: > >Dear friends on the World Parkinson's Exchange List, > > > > I have been following the discussion on our World List about Michael J. > >Fox. His courage is an enormous opportunity in the battle for both > >publicity and research funds about Parkinson's, whether "young onset" or > >not. For a moment, allow me to shift the focus to the rest of us who live > >daily with this dreadful disease. > > > > I suggest that each Listmember immediately decide whether, if called, > >he or she could appear on live TV, or be taped for broadcast on TV. > >BOLD LEADERSHIP is needed from the ranks of PWP's and their CG's (Persons > >with Parkinson's and their CareGivers) to increase our visibility. > > > > If you are available, PLEASE SIGN ON to the list BELOW. PLEASE > >post your reply.. > > > > I would emphasize that the $100,000,000.00 annual research spending > >authorized by the 1997 Udall Act remains UNFUNDED. Projected spending at > >the NIH, despite all of our work, only rose from $34.4 million to $37.4 > >million between fiscal year 1997 and the current fiscal year 1999, > >according to the Parkinson's Action Reporter, vol. ix, no.4, November, > >1998, p.1, "Udall Spending Gap Continues." This is TERRIBLE news. > > > > I am "sponsoring" this listing, below, of TV-available PWP's and CG's > >. Please add your name, i.d., and address, if you are willing to either > >be seen live or be taped for broadcast on TV.. WE MUST BE VISIBLE,and > >join with Mr. Fox. Our stories must be heard. > > > > It follows that Susan Reese's appearance in New York City, on the > >Today Show, on Monday, November 30, at 8:00 AM, would be enhanced if it > >were to include one or more PWP's or CG's. OUR faces must be televised. > >Let's get the leading organizations and the general public talking about > >our own appearances on TV. > > > > WE are the most knowledgeable people to explain the horrors and the > >hopes of living with Parkinson's Disease. WE can provide so much > >information and education as advocates for the research to cure PD. > > > >PLEASE sign on to the list below: > > > > LIST OF PWP'S AND CG'S WILLING TO APPEAR ON TV/ BE TAPED FOR > >BROADCAST > > > > NAME I.D. Address Country > > PWP or CG e-mail address > > > > 1. Ivan Suzman 49/39/36 Portland, Maine USA > >pwp [log in to unmask] > > 2. David Moreland 55/11 Salem, Oregon USA PWP > [log in to unmask] > > 3. > > 4. > > 5. > > 6. > > 7. > > 8. > > 9. > > 10. > > 11. > > 12. > > 13. > > 14. > > 15. > > 16. > > 17. > > 18. > > 19. > > 20. > >^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > > Ivan Suzman 49/39/36 [log in to unmask] :-) > > Portland, Maine land of lighthouses 38 deg. F :-) > >******************************************************************** > > > > > >>We also spoke a little about the issues arising from MJF going public, > >>especial how they affect YOPDs, and how the MJF publicity is painting > >>too rosy > >>a picture - but we agreed that increased public awareness can only > >>stimulate > >>more interest in finding a cure. And she said that she could not say > >>in > >>advance exactly what she would say on Monday but would have to be > >>guided by > >>what questions she was asked - but that she would always have our > >>interests at > >>heart. And that she would try and get as much into her 4 minutes as > >>possible. > >>Lets hope that she is successful. > >>Good Luck, Susan!! > >> > >>Hilary Blue (49,25,16) > > > >>Hilary Blue wrote: > >>>>> [log in to unmask] wrote: > > > >>> > Susan Reese, RN, LCSW-- Director of the American Parkinson's > >>Disease > >>> > Association's Young PD Information & Referral Center will be > >>interviewed on > >>> > the Today Show, Monday, November 30 about young-onset PD and the > >>APDA Center > >>> > created specifically to address the needs of the young person with > >>PD. > > > > > _________________________________________________________ DO YOU YAHOO!? Get your free @yahoo.com address at http://mail.yahoo.com