Ivan, I'd like to know a bit more about the publicity list you're creating before I sign up. More specifically, who is the list being sent to, and how is it going to be maintained, i.e., contacting and updating information to TV stations, radio, etc. handled in what manner? Are the speakers going to be checked to make sure they will be able to actually DO public speaking? With many of us, the spirit might be willing, but because of our particular PD symptoms, some just cannot speak well consistently (and I am one of those persons, tho I have many years of public speaking in my background as a former member of Toastmasters International). I don't mean to throw ice water on this project, but IF this isn't a carefully orchestrated and well planned out project, it won't be of use to the Parkinson's community 'cause the Industry (the Entertainment Industry) won't see it as generating viewers. And it's those viewers they want, for their ratings. Those ratings bring in the sponsors, and THEY bring in the big bucks. As an INDUSTRY they don't give a rat's a*s about people with Parkinson's. So, Ivan, do you plan on TV spots with PWPs from smaller local stations, where the viewers might be neighbors of the Parkie speaker (and I'm NOT knocking that - it IS a valid way to get the word out), or are you going to go big-time and try to break down the barriers in Hollywood? Please fill me in a little so I can have a clear picture of what you're planning to do with this information you're gathering... Thanks a lot.... Barb Mallut [log in to unmask] -----Original Message----- From: Ivan M Suzman <[log in to unmask]> To: Multiple recipients of list PARKINSN <[log in to unmask]> Date: Sunday, November 29, 1998 6:38 AM Subject: Re: PLEASE SIGN ON -who will be no. 4 ? >Joan Snyder, Peoria Ill. has just volunteered (see her e-mail --"The >list") >Updated list of "TV-ready PWP's and CG's" available follows below. >Barb Mallut and Bill Heitman, are you next? Linda and Lynda? Rita >Weeks? >Bruce Anderson? Marling McReynolds? Don and Vivian McKinley? Jim Finn? >Joao de Carvalho?Janet Paterson? Barb Patterson? Eveyone elseI'm not >thinking of? >And how about Sylvia from the Dateline segment on Deep Brain Stimulation, >what courage! >Please, folks, get on this list if you can.. It is really important. > >>> > PLEASE sign on to the list below: >>> > >>> > LIST OF PWP'S AND CG'S WILLING TO APPEAR ON TV/ BE TAPED FOR >BROADCAST >>> > >>> > NAME I.D. Address >Country PWP or CG e-mail address >>> > >>> > 1. Ivan Suzman 49/39/36 Portland, Maine USA >pwp [log in to unmask] >>> > 2. Hilary Blue 49/33/24 Annandale, Virginia USA >pwp [log in to unmask] >>> > 3.Joan Snyder 47/39/37 Peoria, Illinoia USA > pwp [log in to unmask] >>> > 4. >>> > 5. >>> > 6. >>> > 7. >>> > 8. >>> > 9. >>> > 10. >>> > 11. >>> > 12. >>> > 13. >>> > 14. >>> > 15. >>> > 16. >>> > 17. >>> > 18. >>> > 19. >>> > 20. > >^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > Ivan Suzman 49/39/36 [log in to unmask] :-) > Portland, Maine land of lighthouses 40 deg. F :-) >******************************************************************** > >On Sun, 29 Nov 1998 08:38:29 +0000 Hilary Blue <[log in to unmask]> writes: >>Hilary Blue wrote: >>> >>> I've signed on. Who will be next? Come on, we're all after the same >>goal - >>> maximum media exposure. So lets do it together.! >>> >>> Hilary Blue >>> >>> >>------------------------------------------------------------------- ------------------------------- >>> >>> Ivan M Suzman wrote: >>> > >>> > Dear friends on the World Parkinson's Exchange List, >>> >> > >>> > I am "sponsoring" this listing, below, of TV-available PWP's >>and CG's >>> > . Please add your name, i.d., and address, if you are willing to >>either >>> > be seen live or be taped for broadcast on TV.. WE MUST BE >>VISIBLE,and >>> > join with Mr. Fox. Our stories must be heard. >>> >> > >>> > WE are the most knowledgeable people to explain the horrors and >>the >>> > hopes of living with Parkinson's Disease. WE can provide so much >>> > information and education as advocates for the research to cure >>PD. >