 |
 |
I agree that you should print out different case scenerios showing how it can be just a twitch to totally dehabilitating. Showing the worse case and saying, "This is what will happen to you," not just what might or could happen. Which is the message some might interpret it as. I have a brother with MS (and a mother in law with PD) If my brother Dave had only been told the worse case and not the lease, which in his case, thank God, so far has only been tiredness and some numbing in his legs. But if he had ONLY been shown the worst thing that could happen to him as a person with MS I am afraid that he might have ended it all right there. It is always good to know the most and the least. That is NOT sugar coating, THAT is the truth. No, I do not have PD so I really don't know what it feels like. The worst thing that I have had in my life is Epilepsy. But my mother in law has severe PD, she can still walk (actually it's more of a shuffle) but has severe tremors and other symptoms and I would hate to show a scenerio with her or someone even worse in it to someone who was just diagnosed with PD and say this is how severe PD is. It would send the message of this is how you will end up. It would terrify anyone. Laurie > >> And for goodness sake, STOP sugar-coating that information. Get REAL >> and get HONEST with the general public. They DESERVE TO KNOW THE >> TRUTH about Parkinson's Disease! > >I think (IMHO) it is important not to print the worst-case scenario all over >the media. The picture we paint must be nuanced. Imagine the guy or gal >who just came home - alone - from the neuro who said "You might have >Parkinson's Disease". >The shock made him/her so numb that it was impossible to formulate any >questions about how the future might be. Later, (s)he boots the trusty >computer, gets onto the web and reads that life will be living hell in >ten years. > > > Then what? > > > >/John. (29 years/ diag 1?/ onset 18) > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com