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Hi Gerit. Welcome to the list. Re the incoming mail problem I suggest you have your mail for the list put automatically in its own box- you can do it with a number of mail programs including netscape which I use. That at least keeps the list mail separate. You will be able to delete a lot of the extraneous mail then either by its heading or sometimes by its sender. Unless you are willing to devote an extraordinary amount of time and energy it is the only way to sort out the mail.. I am going to answer your second question as a separate post. Charlie "Kleynscheldt, Gerrit" wrote: > Hi to all of you! > I joined you verbose lot just before the weekend (and agree with all who > said that the amount of incoming mail is much too many). > I am 43, was diagnosed at age 39, & my wife can - using the exact science of > hindsight - trace signs of PD back at least another 5 years before > diagnosis. I live in Bellville, near Cape Town in South Africa, and there > is an active PD-society in this country. I am employed but is looking at > applying for disability for various reasons. > > The magic of the Internet has the unfortunate down-side that I seem to know > as much about PD as my neurologist! > > It has been interesting to see the comments about the lack of genuine > understanding from the medical fold. This reminds me about the explanation > of the difference between "involved" and "committed": To facilitate bacon > & eggs for breakfast the chicken is involved to supply the eggs, but the pig > is totally committed to supply the bacon. Almost every non-PD person gets > "involved" - whereas with PD you are "committed". Everybody gives advice > etc, but you will sit with your PD now and also in later life. You owe it > to yourself and it is your personal battle to follow the route that will > best minimalise the PD-effects in future. > > I have a question that I have not yet seen addressed anywhere: > In a debilitating illness like PD one is initially able to carry on with > your duties as an employee. At some point a stage is reached where you are > diagnosed as being unable to work and thus declared disabled. > 1. This cross-over stage seems to be very subjective, depending on the > report by (inter alia) the neurologist, who compares you with the worst > cases that he has come across. > 2. It is very difficult to convey the non-visible effects to an > outsider. How does the Dr measure exactly how much the arm is numb, how > much fatigued I am, exactly how little energy I have, how much of my > procrastination can be blamed on PD, etc. > 3. At the workplace I become a passenger, doing work but not performing > well at it and seeing my colleagues get ahead while I barely survive each > day. > 4. Compared to my colleagues of the same age - by the time they go on > pension to a well deserved rest I will be in an advanced state with my PD. > Should the insurer not consider paying the disability earlier so that I can > also have a period of relative sunshine before PD takes a stronghold? They > know that they will definitely have to pay the benefit, but they postpone > their decision, without a visible advantage. > > Has anyone thought about this and how is the insurer and/or employer > approached so that the case is looked at holistically and with empathy, > rather than the current and (for them) safer route of clinical reports. > > Some thoughts on this anyone? > > Regards, > > Gerrit Kleynscheldt > > Tel: +27 21 947 8918 > Fax: +27 21 947 1521 > > Please note the following: > Because e-mail can be altered electronically, > the integrity of this communication cannot be guaranteed. -- ****************************************************************************************** Charles T. Meyer, M.D. Middleton (Madison), Wisconsin [log in to unmask] ******************************************************************************************