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Thanks, Charlie, for a wonderfully lucid explanation of what is happening with
MJF.  My own husband was diagnosed only two years ago, but went on medical
leave in July.  It is possible, in fact, probable that he had PD for a much
longer time, but that it went undiagnosed for years.  Medications (and he's
tried almost all of them) have not been very effective and his doctor, a well
known movement disorders specialist, is talking to him about deep brain
stimulation.  No one symptom is all THAT BAD, but together (cumulatively) they
and the side effects of the medications (that don't work all that well anyway)
impair him to the degree that he cannot work because he cannot stay awake,
concentrate, maintain his balance, be heard, etc.  It's like he's got all the
parts that should allow him to function but can't put them together.  On any
scale, he would probably come out as late mild, but late mild in his case is
too much or too little to allow him to function in the business world.

In the beginning, he tried desperately to hide his situation.  He would even
stick the point of an open pocket knife into his hand in an effort to cause
enough pain to stay awake during meetings.  My guess is that many on this list
could identify with this.

We want to see more of a track record with the sub-thalmic (Did I spell
thalmic right?  Doesn't look right.) deep brain stimulator, but it's not out
of the question.  If meds aren't doing it or are causing such side effects,
then it may be something we really consider down the road here.  I'm impressed
by what Michael's op did for him from what I can see on Spin City, etc., and
commend him for taking the chance.  Whatever, he did what he felt he had to
do, just as we do.

We have  no way of knowing how MJF is really doing, bless his heart.  He has
an image to preserve just as so many folks do who get this damnable disease
during their working years.  I'm happy for him that he has achieved as much as
he has.  Imagine what he's been working against.  He happens to work in an
industry that takes a lot of talent to really make it, but one that rewards
people who do quite handsomely.  He is fortunate to have made it early.  He
will need it.  I'm glad that he will not have to suffer the plight of so many
other young onset PWP.  That one person should be separated from her children
or have to accept a drunken caregiver for $9.00 a night is disgusting!

In my life, I've never known a collection of brighter people than those on
this list!  Surely, we shall discover a way to get across the idea that PD is
a serious debilitating illness w/o taking away hope from those who need it,
who are new to this whole business, or old to it either!

I've been ill and have missed this group!

Affectionately,
Barb Brock 54 cg Art 57 (2yrs)