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Barbara Mallut =96 In response to your scathing retort to Linda regarding: late mild stage=92= PD and brain surgery - Kindly consider getting off your soapbox and the highhorse you rode in on and speak of what you know or otherwise spare us = your opinion! Yes people have brain surgery, in my case a thalomotomy, even in early mil= d stage PD. I feel no need to share with you or the list my reasons and ris= k an ignorant, spurious attack. I know I made the right decision for me as do= es my family, my 2 neurologists and the neurosurgeon. As a person in my mid-thirties with PD it=92s hard enough trying to raise = a family, build a career, and just keep doing what I can to keep a positive outlook and maybe even make the world a better place. In my opinion, the PD list would be a better place if the whining, complaining, bitter people started a separate listserv for feeling sorry f= or yourselves and for criticizing others. The rest of us could then concentr= ate on information sharing and working constructively to beat the menace PD, n= ot PWP or others we choose to pass judgment on. It=92s hard to believe this started with MJF being judged and criticized b= y the very people who should have a pretty good idea what he is going through. = So please keep your opinions to yourself. Didn=92t you mother ever teach you,= if don=92t have something nice to say, don=92t say anything at all? With apologies for my own soapbox, Lynda ------------------ Barb wrote on 11/28/98: Date: Sat, 28 Nov 1998 02:19:57 -0800 From: Barb_MSN <[log in to unmask]> Subject: Re: Michael J. Fox articles "Linda, you quoted Reuters as saying: "said Fox is in the 'late mild' stage of Parkinson's and that he is hopeful..." Hmmmm.... (thinking) Does ANYONE have *VOLUNTARY* BRAIN SURGERY when they're in the "late MILD" stage of a disease?" Technically, that MAY be what the medical profession calls feeling so- rotten-that-ANYTHING-including-voluntary-brain-surgery-is-preferable- to-life-as-it-is. But REALISTICALLY (and speaking as a Parkie who had a very successful unilateral pallidotomy 4 years ago...), when ya finally hit the stage where voluntary brain surgery looks like the ONLY OPTION, well, THAT'S *NOT* a "late MILD stage of ANY disease! When your back's against the wall, and you have little or no quality of life, when you begin to think that ANY form of treatment, including voluntary experimental brain surgery has GOT to be better than life as it is... hanging onto your sanity (and not always succeeding) by a thread. in MY book, that's definitely not "late MILD" stage. Medical professionals, and news media moguls, THINK about what you're saying, huh? Step outside the conventional box and THINK! Sheeeesh! The guy has a terrible, chronic, degenerative disease, is young, has a great job, devoted wife and 3 little kids, plus a huge following, and his condition is SO bad that he opts for voluntary brain surgery as a last resort, and THAT'S called, "late MILD?" GET REAL! WE know the difference between "late MILD," and feeling like sh*t - why can't YOU put together two and two and come up with four?!? Barb Mallut (spending the weekend perched on soapbox) b<grin> [log in to unmask],com