 |
 |
Thank you Bob and Linda, Mr. Ali and Mr. Fox, Mr. Fox, please work with all of the Parkinson's community rather than one organization exclusively. I am still scarred financially and emotionally from the trip I made with a Maine CNA all the way to the NPF in Miami, in May , 1985 to be evaluated for pallidotomy. The NPF called us at the hotel just 3 hours before the scheduled appointment to confirm--but no doctor ever showed up!! I invested $2200.00 , when my annuak income was $8300 (SSDI), in the medical part of the trip, which also allowed me a rare visit to see my dad, and a chance to rest for a week in Florida, after a brutal winter in Maine. I got no apology, no help, no new appointment---but I eventually buried my pain, rather than sue the NPF I was already too exhausted even then to do anything but pick up the pieces and move on. This scandal rocked the Parkinson's community, but money talks. I'm leaving this topic now, as it is way too awful to go further. Mr. Muhammad Ali recently wrote me (typed by his personal assistant, Kim) to thank me for all the work I am doing for our community God Bless Mr. Fox, Mr. Ali and the rest of us. Mr. Fox with you and Mr. Ali both helping us, we are all beginning to believe a cure iis really within reach. IVAN SUZMAN ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 49/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses deg. F :-) ******************************************************************** On Fri, 4 Dec 1998 06:34:06 -0500 Linda J Herman <[log in to unmask]> writes: >Bob Dolezal said: >"This is one of the most immportant issues to face the Parkinson >community >in the six years I have been a member. I doubt that we have much of >a >say, but,if we did, how would you vote?" > > I'd like to second Bob comments. I've communicated similar >thoughts to a representative of one of our U.S. Parkinson's >organizations, who agreed on the importance of collaboration. If any >others are listening - please do not get into a competition for MJF. >If he does choose to become involved, couldn't he be a spokesperson >for the Parkinson's community as a whole, working with all groups, >rather than just one organization. Do you think you can all try to >work together on this? > >Linda Herman >[log in to unmask]