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Sharon.... keeping in mind that we all feel our respective and collective symptoms in different ways - some very similar, and some not at all the same as anyone else may feel, I get an internal tremor (not visible to the naked eye, but it can be FELT), both vocal cords are involved, which affects my breathing, as well as my speech. My tongue, from the tip and moving on down the throat, has slowly developed a life of it's own, and movement such as speech and swallowing can often be difficult. I have dystonia and it's manifested by a very rapid tremor in the jaw, chin, and tongue. My eye sight's affected, as I periodically get double vision, and lose depth perception. Because of my meds, I usually have dry-eye and use eye drops regularly throughout the day. In fact, it sometimes seems like I have TWO pairs of eyes! The ones that work "normally" and the ones that simply "do their own thing." Of course, there's that much commented about and seemingly universal-to-all Parkies, ya olde constipation. Then there's urinary frequency a constant URGE feeling (the entire problem is considerably better since I started seeing a urologist (THANK HEAVEN!!!), I've had a number of urinary track infections over the past 15 months, which have been attributed to the Parkinson's. There's the severe shoulder pain which can come from having a torn rotator cuff, something that 50% of all Parkies suffer from at one time or another. There's also just plain slowing down... less fine tuning of organs, muscles and other body parts that used to do what they were designed to do in a reasonable amount of time, and NOW seem to have gone to sleep on the job! We chew slowly, we move slowly, we talk slowly. we even seem to THINIK slowly in many cases. THAT'S what's going on internally with many of us as time passes. And more.... Barb Mallut [log in to unmask] -----Original Message----- From: Sharon Starr <[log in to unmask]> To: Multiple recipients of list PARKINSN <[log in to unmask]> Date: Monday, December 07, 1998 5:13 PM Subject: Re: Ideas on preventing Colleen's husband's off-times >Hey, Barb. You've probably told us before but.............just what are the >internal symptoms, as closely as you can describe them? My mother's >dementia is such that she cannot explain it. And thanks and Merry >Christmas. >Sharon Starr, Daughter and CG for Rae 75/50/45 (age now/age dx/age first >symptoms) [log in to unmask] Florence, AZ > > >-----Original Message----- >From: Barb_MSN <[log in to unmask]> >To: Multiple recipients of list PARKINSN <[log in to unmask]> >Date: Saturday, December 05, 1998 1:40 PM >Subject: Re: Ideas on preventing Colleen's husband's off-times > > >>Kim.... >> >>I've had PD for 24 years (YIKES! Just had another "Life with PD >>anniversary!"), and have never had a visible tremor. However, prior >>to my 10/94 unilateral pallidotomy, I was stiff as the proverbial >>board (with lotsa additional PD symptoms, too, tho didn't have the >>festinated walk you mentioned). >> >>Sinemet was and is the only PD-related drug I consistently take on a >>daily basis over the years. I must admit, for several months prior >>to my pallidotomy, it was touch and go which was worse - the PD >>symptoms or the Sinemet-side-effect-symptom. Suffice it to say, BOTH >>were pretty darn awful. >> >>Post-pallidotomy, literally from the moment the surgery was over, >>I've had no further side effects from the Sinemet and no visible PD >>symptoms on the right side of my body. >> >>About 18 months ago, the PD skipped over to my left side and so far, >>the Sinemet's working well for symptom-management by controlling >>VISIBLE symptoms (tho not for internal symptoms that I can tell). >> >>Barb Mallut >>[log in to unmask] >> >> >>-----Original Message----- >>From: Kim Wilkerson <[log in to unmask]> >>To: Multiple recipients of list PARKINSN >><[log in to unmask]> >>Date: Saturday, December 05, 1998 5:52 AM >>Subject: Re: Ideas on preventing Colleen's husband's off-times >> >> >>>i thought sinemet was primarily used to minimize the tremors. is it >>also used >>>for the stiffness, shuffled gait, freezing etc.? >>> >>>kim wilkerson >>>wilkerson consulting group >>>cedar rapids, iowa >>>[log in to unmask] >>> >> >