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Medicare, Medicaid, Nursing Home staff, bureaucracy.....I do not know quite how to advise you, Robin, but my instinct is to contact a lawyer or legal aid and tell the nurse that she is limiting your mom's freedom of movement beyond any normal standard of reasonableness. I think that nurses like that should be reprimanded for invading your privacy and your basic right to take your mom to wherever you want to take her. Tell the directors of the assisted living center that you wish to file a complaint, and want to have a different visiting nurse assigned to your mom! Ivan ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 49/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses 46 deg. F :-) ******************************************************************** On Tue, 8 Dec 1998 00:01:51 -0500 Camilla Flintermann <[log in to unmask]> writes: >Hi Robin--that's a real shame! When they signed on for Medicare home >care >they SHOULD have warned you about the "home bound" status that is >required >by law. When Peter had a few weeks of home care paid by Medicare last >year, >we were strictly cautioned about this, and told that it was OK to take >him, >say, to our daughter's for a visit, but no eating out, movies, >anything >"recreational"etc. If they did not tell you about this limitation, I >think >you have a legitimate complaint. Perhaps talking with the nurse or >social >worker assigned to her case can help. Give it a try, and let us know >what >you learn. > > >>Hi >>I've read your list for over a year and have grown to think of you >all as >>family. I'm hoping someone can help me. My Mom has had a cousin of >>Parkinson's (cbgd) for several years and has just moved to an >assisted >>living facility. Her movement is several limited and she has been >receiving >>occupation, speech and visiting nurse care provided by Medicare. >> >>Saturday, I took her out in the wheelchair to the mall to see the >Christmas >>sites and enjoy the season. This morning I was notified that the >visiting >>nurse called Medicare and discontinued her services because I took >her out. >>They are claiming it means she is no longer "home bound" and >therefore not >>eligible. Is anyone familiar with this? Do they really expect that >a >>person would never leave the house, especially during the holidays? >How can >>there be any quality to life? >> >>If anyone can help me or point me to where I can clarify this, I >would >>really appreciate it. She can not maintain without these services, >but I >>don't want to keep her locked in either. >>Thanks >>Robin > > >Camilla Flintermann, CG for Peter 80/70/55 >Oxford, Ohio >http://www.newcountry.nu/pd/members/camilla/one.htm ><[log in to unmask]> > > "Ask me about the CARE list for > Caregivers of Parkinsonians ! " >