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Rick,
Stay with the list. You'll find that there are a few "undesirables"
here that I have learned to delete. You'll also find a great group with
plenty of great information.
Ed
CG for mom
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[log in to unmask] at Internet on 12/16/98 11:06:00 AM
To: [log in to unmask] at Internet@CCMAILEXCHANGE
cc: (bcc: Edward W Raasch Jr/GDIS/GDYN)
Subject: numbers and anger
Hi Bill and others,
I suppose I intended to initiate some argument.
For the record, I was diagnosed with PD a year ago and have experienced
symptoms since 1992. I am 47 years old, and my driver's license number is
HERMARFZ9906. Sometimes I just don't like to give my numbers. In fact, I
don't particularly like those numbers, am not proud of them, and don't feel
compelled to share them. If I had written a "nice" message and not given my
numbers, would someone have questioned whether I was a person with
parkinson's? Is this some kind of exclusive club?
Bill, you are obviously angry with me. That's fine. Don't give me this crap
about "poor policy of not being angry with fellow PWP." I AM A PERSON, and
I expect to be treated like one, and sometimes that involves being the
object of someone's anger. I think we better not get into the practice of
tiptoeing around "not being angry" when we are, lest we end up with
messages that drip with disdain while purporting to be even-handed.
I quit the list this morning, then rejoined. No where else to go.
Rick
47, dx 1/98
>Rick,
>I notice that you have no numbers behind your name. That must mean one of
two
>things: one--you are not a PWP, or two--you haven't decided to conform to
any >protocol.
>
>Your theory sounds noble (it is crass to use human beings for "our ends")
and >I might have agreed with you a few short years ago. However, at this
point, I
>choose to not debate that view on its merits. Rather I gotta tell you
that >some of us are at the point where we find nobility of purpose
secondary to >survival. It is difficult to remember that your purpose was
to drain the >swamp, when you are up to you're a... in alligators.
>
>Please note I am not angry with you. It is a poor policy to get angry
with >fellow PWP. Even if you are a healthy, normal person, my purpose in
writing >this is to oppose your idea, not to waste energy trying to flame
you. What >you said was your opinion. The fact that what you say doesn't
agree with my >view is irrelevant. I just don't want anyone to stop
"using" folks to this >end.
>
>I Hope in light of this we users can be forgiven for not following your
brand >of PC. If MJF says he says he announced his PD "in order to help
others with >the disease," my first instinct is to help him do so. My
thinking does not >reject that concept either. To be worthy of this help,
I need to do two >things: not ask for frivolous things or those which I can
do for myself
and be
>willing to do what I can to help.
>
>To be consistent I need to say that if I can be used to help stop this
>ridiculous disease, then please please, use me.
>
>
>Regards
>WHH 55/38/37
>
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