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HI LIst, Kees and Phil, During the daytime, the OFF problem is worse than being alone. I keep busy during the day. But DURING THE NIGHT, I am battling rigidity, the need for sleep, and trying to stay warm enough.. If an OFF is too deep, it is very, very hard for me to battle back to ON. I get dystonia, cramps and curled toes , which my doctors have NEVER seen, all at once. Waking up OFF, I can be too stiff to be alone, even though I take all the precautions Kees Paap just posted. On my night table is a fascinating new world of things that only a PWP would recognize. Knowing that a deep OFF at night happens, I get kinda' nervous, or worse, very anxious. But overmedicating myself is not an answer, because then I get hot, sweaty and sleepless. My nighttime meds are at 6:30 pm, 9:30 pm, 12:30am, 3:45am, 7:00 am. The arrival of an OFF is relatively predictable, but the DEPTH of the OFF is not. It is when I am quickly walloped by a sudden crash from on to a DEEP off, while meanwhile asleep, that I am in the most trouble. My simultaneous meds are 1/2 tablet Sinemet 25/100,1/2 tablet Sinemet 25/100 CR, and only every other dose, Tasmar, 1/2 tablet x 100 mg = 50 mg. This nighttime endurance test REALLY needs a special attitude, and a caregiver, at this point in my PD journey (13th year since onset of visible symptoms). IVAN ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 49/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses 41 deg. F :-) wild, windy and sunny/ snow melted away ******************************************************************** On Tue, 22 Dec 1998 09:21:05 -0500 "Phil Tompkins" <[log in to unmask]> writes: >Ivan, > >I'm trying to understand your situation. Which for you is the worse >problem, being really off, or, regardless of PD or no PD, being >alone? I know some rather extroverted people (my wife, for example) >for whom merely being along has sometimes been a horror -- a sense of >facing the abyss that has brought on panic. > >Phil Tompkins > >