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Ivan... I used OT wake up several times a night, and despite having snuggled into 2 down comforters AND a Hudson Bay blanket (wonderfully warm, all wool blanket) when I went to bed, I'd always be freezing cold when I woke up. I found the "cure" for waking up frozen in the Sears Healthcare Catalog - yours free by calling Sears(800) 326-1750. On page 58, you'll find the "Sunbeam Bedwarmer with 'Brain' Mattress Heating Cover." (item "C" on page) And since this wonderful device goes UNDER you sheet, instead of resting on top of it like an electric blanket, it makes it "Parkie-friendly." That's right - no struggle wrestling with a cover and electric cord while trying to sleep. he mattress heating cover comes in a variety of sizes and isn't exactly cheap (twin size is $69.99, full is $79.99, king is $119.99, and there's other sizes in between). I cannot begin to tell ya the significant difference in the quality of sleep I have since I got this heated mattress cover. The "brain" in it adjusts the heat to a continuous and uniform warmth so there's not even any temp adjustment needed by YOU.... the cover does it all on it's own for ya. BTW..... if you get the cover on sale, as I did, there's a significant saving involved. Thinking of ya, m'friend.... Love from yer Cyber-sis.... Barb Mallut [log in to unmask] -----Original Message----- From: Ivan M Suzman <[log in to unmask]> To: Multiple recipients of list PARKINSN <[log in to unmask]> Date: Tuesday, December 22, 1998 9:38 AM Subject: Re: Have they ever seen you really OFF ? >HI LIst, Kees and Phil, > > During the daytime, the OFF problem is worse than being alone. I keep >busy during the day. But DURING THE NIGHT, I am battling rigidity, the >need for sleep, and trying to stay warm enough.. If an OFF is too deep, >it is very, very hard for me to battle back to ON. I get dystonia, >cramps and curled toes , which my doctors have NEVER seen, all at once. > > Waking up OFF, I can be too stiff to be alone, even though I take all >the precautions Kees Paap just posted. On my night table is a fascinating >new world of things that only a PWP would recognize. > > Knowing that a deep OFF at night happens, I get kinda' nervous, or >worse, very anxious. But overmedicating myself is not an answer, because >then I get hot, sweaty and sleepless. > > My nighttime meds are at 6:30 pm, 9:30 pm, 12:30am, 3:45am, 7:00 am. >The arrival of an OFF is relatively predictable, but the DEPTH of the OFF >is not. It is when I am quickly walloped by a sudden crash from on to a >DEEP off, while meanwhile asleep, that I am in the most trouble. > >My simultaneous meds are 1/2 tablet Sinemet 25/100,1/2 tablet Sinemet >25/100 CR, and only every other dose, Tasmar, 1/2 tablet x 100 mg = 50 >mg. > >This nighttime endurance test REALLY needs a special attitude, and a >caregiver, at this point in my PD journey (13th year since onset of >visible symptoms). > >IVAN >^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > Ivan Suzman 49/39/36 [log in to unmask] :-) > Portland, Maine land of lighthouses 41 deg. F :-) wild, windy >and sunny/ snow melted away >******************************************************************** > >On Tue, 22 Dec 1998 09:21:05 -0500 "Phil Tompkins" <[log in to unmask]> >writes: >>Ivan, >> >>I'm trying to understand your situation. Which for you is the worse >>problem, being really off, or, regardless of PD or no PD, being >>alone? I know some rather extroverted people (my wife, for example) >>for whom merely being along has sometimes been a horror -- a sense of >>facing the abyss that has brought on panic. >> >>Phil Tompkins >> >> >