 |
 |
Sounds like your doing much better Ivan! Good Luck to you, Coleen :-) Reunited adoptee phone/fax 541-862-2226 Missing Links,Grants Pass, Or. [log in to unmask] or [log in to unmask] http://www.barysoftware.com &%&%&%&%&%&%&%&%&%&%&%&%&%&%&%&%&%&%&%&%&% Oregon Adoptee Rights Initiative Measure 58 Our Birth Certificate: Our Right http://www.plumsite.com/oregon/ -----Original Message----- From: Ivan M Suzman <[log in to unmask]> To: Multiple recipients of list PARKINSN <[log in to unmask]> Date: Tuesday, December 29, 1998 10:38 AM Subject: Re: A PWP needs help/ more about TASMAR >^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > Ivan Suzman 49/39/36 [log in to unmask] :-) > Portland, Maine land of lighthouses 3 3 deg. F :-) snow or rain >on the way >******************************************************************** > >On Tue, 29 Dec 1998 10:52:54 -0500 judith richards <[log in to unmask]> >writes, in part: > >>"....The neuro who saw my friend in the hospital yesterday morning said >>they are having all kinds of problems with patients who had to come off >>Tasmar, but he didn't elaborate....." > >Judith, J.R., Brian and Janet, and friends, > >I am following the story of Judith's friend closely. I tend to agree >with Janet about the over-medication problem, as well as about the >too-frequent switching from one medication to another. > >I feel like he should be taken off of virtually all of the drugs except >carbidopa/levodopa. If a baseline could be established for how much >L-dopa he seems to use per hour, then a good starting point for the >re-introduction of an agonist and/or an MAO-B inhibiitor and/or a COMT >inhibitor should be possible. > >Morphine by nose in a tube seems drastic, doesn't it? > >Thank you Judith for sharing this crisis with all of us. > >My only comment about my great success with Tasmar is that my neuro and I >are taking it so gently, using only a half-dose of 50 mg at any point, >that I am succeeding very well with it. > >I wonder, in respect to your comment above, what thoughts the Canadian >physicians who read this and the Canadian PWP's recently stopped from >using Tasmar might have, about continuing PWP's on Tasmar on a half-dose >at a time basis, when possible, and with a lowered maximum daily >total-perhaps 300 mg? > >I have even suggested to the local Roche representatives, that they >manufacture a 50 mg tablet. The response I got, that it would take years >of testing, and cost 6 to 12 million dollars, was very disappointing. > >I could be way off base about Tasmar, but at least in my own personal >experience, it has been a real miracle. In fact, the last two days, my >SInemet was down from 900 to 750, as opposed to the original 1600mg. On >a real good day, I can now last almost all day with three short >off-periods of 1/2 hour or less. Today is one of those days-complete >with some driving, and a 45-minute interview of a prospective Personal >Care Attendant. > >Ivan >