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Barbara Patterson's welcome message suggested that I might want to = introduce myself once I joined this group. I'm a new research coordinator = for a genetic study of Parkinson's disease, and I was hoping to learn a = couple of things from this group. 1. My background is in genetics, not neruology. I'm hoping to learn the = general concerns of PWP's, to bring myself up to speed on the current and = relevant issues for research participants whom I may contact in the = future. 2. I would like to hear from anyone who has an experience they would like = to share about being asked to be in a research study. Good experiences, = bad experiences, thoughts, feelings, etc. I've got some strong feelings = about how to approach, and how not to approach, research participants. And = recently I was approached to be in a research study as a participant, = although for a different diagnosis. I'd like to hear more specifically = from folks with PD, however. Were there things about being asked to = participate that made you want to do so? Made you angry? Made you = wonder? =20 (Pease no flaming or defaming - no names of other researchers need be = mentioned - I just want to learn what about research is important to you = as a PWP). Feel free to contact me off-list. I look forward to learning with you! Kate Dietrich, MS Research Coordinator Oregon Health Sciences University 1-800-767-1748 [log in to unmask]