This is a multi-part message in MIME format. ------=_NextPart_000_0035_01BE3A18.1F55DEE0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable Hello All... My name is Shari Ward and I have just re-joined the list after being off = it for about 6 or 8 months. Symptoms ( a slight tremor in the left hand) showed up while I was in = Physical Therapy for a very painful Frozen Shoulder in 1986. I was also = having other problems, including skin eruptions on my face and torso, = leading my GP to believe I had Lupus and after a time had me see a = Dermatologist. The Dermatologist biopsied several lesions at various = sites and returned a diagnosis of Jessner's Lymphocytic Infiltration of = the Skin. (Anyone on the list ever hear of it before??) Anyway...to make a long story a little shorter, I was eventually sent to = a neurologist, who did the regular testing, plus an MRI along with a = bunch of blood work but would not give a definitive diagnosis of = Parkinson's Disease...but instead indicated that I may have Wilson's = Disease due to the toxic level of copper in the blood tests. He = eventually sent me to another Neuro at the Movement Disorders = Clinic...who took all of 5 minutes to say "Parkinson's Disease".=20 When I asked why it had taken so long for someone to actually give me a = diagnosis (6 years by this time)...he simply said that if I was a woman = in my 70's, almost any doctor would have said I had PD. I was 45 when the tremor first showed up....51 when diagnosed with = PD....and will be 58 in June of this year. So, what do I say when asked = how long I've had PD....6 or 12 years? I was quite ill during the first = 6 years which was confusing to the doctors. During these past 6 years, = I have been on just about every Parkinson's med there is and could not = tolerate them with the exception of Sinemet CR 100\25, which worked for = about 2 1/2 years and then I couldn't tolerate it.=20 I should mention that at the beginning of my illness I became Allergic = to many things that I had not been sensitive to before. And went into = severe Anaphylactic Shock after my first dose of Artane (Thank goodness = I was in the doctor's office at the time). I'm now on Sinemet CR 100/25( 3xdaily) and Mirapex (1.5 mg 3xdaily) = also Elavil ( 25mg 1 at bedtime). I never did post any information about myself the first time I joined = the list but it sure looks like I made up for it this time. Sorry about = the lengthy post...but I don't know what to put in and what to cut out.=20 Thanks for being there - all of you. Shari sjward @home.com ICQ #9242499 ------=_NextPart_000_0035_01BE3A18.1F55DEE0 Content-Type: text/html; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable <!DOCTYPE HTML PUBLIC "-//W3C//DTD W3 HTML//EN"> <HTML> <HEAD> <META content=3Dtext/html;charset=3Diso-8859-1 = http-equiv=3DContent-Type> <META content=3D'"MSHTML 4.72.3110.7"' name=3DGENERATOR> </HEAD> <BODY bgColor=3D#ffffff> <DIV> </DIV> <DIV><FONT color=3D#000000 size=3D2>Hello All...<BR>My name is Shari = Ward and I have=20 just re-joined the list after being off it for about 6 or 8 = months.<BR>Symptoms=20 ( a slight tremor in the left hand) showed up while I was in Physical = Therapy=20 for a very painful Frozen Shoulder in 1986. I was also having = other=20 problems, including skin eruptions on my face and torso, leading my GP = to=20 believe I had Lupus and after a time had me see a Dermatologist. = The=20 Dermatologist biopsied several lesions at various sites and returned a = diagnosis=20 of Jessner's Lymphocytic Infiltration of the Skin. (Anyone on the = list=20 ever hear of it before??)<BR>Anyway...to make a long story a little = shorter, I=20 was eventually sent to a neurologist, who did the regular testing, plus = an MRI=20 along with a bunch of blood work but would not give a definitive = diagnosis of=20 Parkinson's Disease...but instead indicated that I may have Wilson's = Disease due=20 to the toxic level of copper in the blood tests. He eventually = sent me to=20 another Neuro at the Movement Disorders Clinic...who took all of 5 = minutes to=20 say "Parkinson's Disease". <BR> When I asked why it had = taken so=20 long for someone to actually give me a diagnosis (6 years by this = time)...he=20 simply said that if I was a woman in my 70's, almost any doctor would = have said=20 I had PD.<BR>I was 45 when the tremor first showed up....51 when = diagnosed with=20 PD....and will be 58 in June of this year. So, what do I say when = asked=20 how long I've had PD....6 or 12 years? I was quite ill during the = first 6=20 years which was confusing to the doctors. During these past 6 = years, I=20 have been on just about every Parkinson's med there is and could not = tolerate=20 them with the exception of Sinemet CR 100\25, which worked for about 2 = 1/2 years=20 and then I couldn't tolerate it. <BR> I should mention that at the=20 beginning of my illness I became Allergic to many things that I had not = been=20 sensitive to before. And went into severe Anaphylactic Shock after = my=20 first dose of Artane (Thank goodness I was in the doctor's office at the = time).<BR>I'm now on Sinemet CR 100/25( 3xdaily) and Mirapex (1.5 = mg=20 3xdaily) also Elavil ( 25mg 1 at bedtime).<BR>I never did post any = information about myself the first time I joined the list but it sure = looks like=20 I made up for it this time. Sorry about the lengthy post...but I = don't=20 know what to put in and what to cut out. <BR>Thanks for being there - = all of=20 you.<BR>Shari<BR>sjward @home.com<BR>ICQ #9242499<BR></FONT></DIV> <DIV> </DIV></BODY></HTML> ------=_NextPart_000_0035_01BE3A18.1F55DEE0--