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At 13:25 99/01/19 -0500, you wrote: >Dear list friends: >Our friend Joe died today after a three-week battle we thought we were >winning. >You have read about Joe's problems which started right after Christmas >after he had been taken off Tasmar and put on Requip. Later it too was >removed. >The fatal problems started with severe freezing episodes right after >Christmas. Joe was released from hospital on Friday, after three weeks, >when it appeared that problem had been conquered. At that time he had >been placed on Amantadine, in addition to his Sinemet. >However, he suffered psychotic episodes all night Friday and was taken >to Emerg. His meds were reduced Saturday and he was sent home. He >suffered severe psychotic episodes again Saturday night and was taken to >Emerg at a psychiatric ward where his neuro (movement disorder >specialist) would be on duty later Sunday. >He was admitted under care of the MDS and psychiatry staff and had some >psychotic episodes during the night but appeared to be calming down in >the morning. He was given his last dose of Sinemet at 6 a.m. and stopped >breathing about 7:30. >The coroner, the PD specialist, and the rest of us don't know why Joe >died. Parkinsons is not fatal. But Joe's dead. >As soon as we know, we'll tell everybody why our fellow Parkinsonian is >no longer with us. >There are many more details, such as swallowing problems and feeding >tubes and timing of meds, and dosages, and fear of the psych ward which >he ended up in, but at this time we don't know how they were involved in >Joe's death. Thanks for your caring messages. >Al Richards, cg for Judith >London, Ontario, Canada ><[log in to unmask]> oh, heck, this is a tough one! my instant reaction? 'it shouldn't have happened' 'he should have had better medical care' 'he didn't die from pd - he died from ignorance' but that's the anger and frustration coming to the surface i need to go deeper and find the peace at the centre it's a lesson and it's a hard one the hardest lessons teach us the most the hardest lessons are the most important lessons pd invisiblity = pd ignorance pd visiblity = pd knowledge knowledge = power power = action action = ? = praxis = walk our talk and talk our walk the anger surges again no more ms nice no more medico ego-fawning no more politico pussy-footing we have to be our own strongest advocates we have to love ourselves enough to trust ourselves enough to know we must be loud and we must be heard we need to know joe's name my heart is open to you and judith and all of joe's family and friends janet janet paterson - 51 now /41 dx /37 onset - almonte/ontario/canada http://www.newcountry.nu/pd/members/janet/index.htm [log in to unmask]