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Being online just makes it EASIER for anyone to be privy to our information. To access the archives or even to join the list requires a POSITIVE act on the part of the 'eavesdropper'. Whereas anyone just having fun on the net can land on our list almost without trying. I thnk it was Linda Herrman who compared it to leaving a private letter open in your desk, or having your boss display it for all the staff to see. And yes, I do agree we should have been given the chance to make our opinions known BEFORE the decision was made and to participate in that decision making process. It is my understanding that that was always done before. Hilary Blue ----------------------------------------------------------------------------------------------- Phil Tompkins wrote: > > Further on the subject of privacy -- The PARKINSN listserv all by > itself, without web access, is NOT secure for personal and sensitive > information. I am unaware of any screening of subscribers who join > the list -- any eavesdropper, detective, blackmailer, serial killer, > ambulance chasing lawyer, IRS representative, salesperson, hooker, > etc. may join. We do not know who all the 1600+ subscribers are and > what they might do with what we post here. > > So -- does anyone know of any real incidents of malicious use of > PARKINSN info? The absence of any such incidents increases our > confidence, although the possibility is always there. You have to > weigh the risks vs. the benefits in deciding what to reveal. I do not > know whether web access will really change anything in this respect. > There is already so much personal info from personal internet web > pages that there may be safety in just being among the growing glut > of data. > > However, Linda is correct in that we should have been told of this > in advance and given a choice. Ideally there ought to be a way to > specify in a message to PARKINSN whether it should also go to the web > and/or to the archives. There is a way to remove messages from the > archives, but it is a pain if you want to do this often. > > Thanks, Ivan, for raising the question. > > Phil Tompkins > Hoboken NJ > age 61/dx 1990