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HI JAY Many years ago I was a YOPP young onset parkinson. Now I am an old and tired PWP who is still trying to find the balance point between the "happy face" and a face which would terrify the most courageous person in the world. I am beginning to think the 'happy face' just makes uuus more invisible and easier to dismiss. Tell it like it is. That's my new warcry. President of PAN, Joan Samuelson, (Ihope that is correctly spelled) spoke about PWP being invisible. Her words were effective. And there is the young man who who gave his testimony to the Senate committee just a week ago................. Your posting to the list tells the same story. Hilary Blue I am sure told the PBS newshour the unvarnished truth. And this week in a letter to our local newspaper I said "we are gradually becoming invisible as we lose the ability to move, to talk, to write and to participate in everyday activities." We must keep up the pressure. This is no time to rest and let Mike do it -----MJF can't do it all. Jay, your letter showed supurb timing! Anne Rutherford