 |
 |
THIS MAKES 2 OF US !! -----Original Message----- From: David Cox <[log in to unmask]> To: Bruce Anderson <[log in to unmask]> Date: Saturday, January 23, 1999 1:34 AM Subject: Re: Fw: Fw: Another Young PWP---some thoughts >I will Lobby for 1 billion!!!! Lets get it going!!!! as of right now I am >only 30 and looking for something to do. Yes I do have pd. > > >Dave > >Bruce Anderson wrote: > >> -----Original Message----- >> From: Jay Henkelman <[log in to unmask]> >> .......> As a group, we always have been.........and in >> >essence still are........a lumbering-bumbling giant at best! And until >> >very recently... >> OH REALLY? UNTIL VERY RECENTLY? WHAT THE HELL HAS CHANGED? VIRTUALLY >> EVERY OTHER DISEASE CONTINUES TO RECEIVE MORE, AS MUCH AS IN EXCESS OF 4000% >> MORE, VIA THIS BULLY, AS YOU DESCRIBE IT. IT IS ONE THING TO "MENTION" >> PARKINSONS DISEASE ALONG WITH A COUPLE OF OTHER RELATIVELY UNDERFUNDED >> DISEASES. IT IS QUITE ANOTHER TO ACTUALLY MAKE SOME CHOICES AS TO THE >> FAIRNESS OF THE WHOLE INEQUITABLE MESS. >> I'm with you, Jay. We need to tighten the screws by lobbying our >> congresspeople to open the purse strings and spend some serious money on US. >> President Clinton unilaterally, with no support from our allies, ,just >> wasted* $1.5 billion worth of our missiles attaching Iraq. We should be >> demanding......what? I propose we demand a nice round $1 billion!!!! You >> want notice, recognition? This will get us noticed by the real press. We >> have to get in Society's face & tell them it is not fair to leave us behind >> like this. $1 billion? We tell them it is still little more than half what >> you are spending on curing another wholly voluntary disease - every year! >> Pointing this out will NOT hurt AIDS, not one bit! (Save your threats, boys, >> please.) But it will help us. >> Who's going to do this - lobby Congress for $1 billion? I would say >> forget about the professional PD groups. They have no sense of urgency. >> Who's going to start this if not this >> burned up, doped up group of 1600? I can no longer >> speak and I can walk no more than 5 feet. I've been writing letters. >> "We" need to get angry & do more. Visiting daytime talk shows for more >> happy >> talk was fine. But more of that is not going to do it. >> We have major, major budget surpluses coming up - and we crow over the >> fact that our disease was mentioned in a speech. Pretty pathetic. >> Or maybe PD isn't so bad. Heck we don't die from it. do we. >> >> *"Wasted:" I understand that our attack has not hurt Saddam's control or his >> popularity much. >> >> >an easy target for the neighborhood bully (NIH) to grab our share >> >of the "candy" and run! The time has come to throw the "raw meat" of truth >> >out and go for the "big picture"! It all comes down to the color of green. >> >The equation for attracting research funding is simple. The amount of >> >funding made available will be directly proportionate to the degree of >> >awareness/urgency we create. Our "happy face" will bring us our cure in >> >maybe 10-12 years regardless of what we do. Where we can make a huge >> >difference is by making sure that we ride the current "wave". Tighten the >> >screws any and all ways possible. Our efforts could translate into a >> >savings of 5 to 7 years!!! That would be phenomenal!!! >> >> B. Bruce Anderson (53, 5) >> Schooley's Mtn., NJ >> [log in to unmask] > > > >