For those who are web-literate and web-abled:
On the various web-pages: How about a 'suggested reading' list? A
'support group near you' list? The names, email addresses, snail mail
addresses and phone numbers of the national pd groups from each country?
Easy to follow links from John's website to Jerry's to Simon's to the
National pd groups online? A list of neurologists/mds/clinics in specific
areas? Links to Simon's pdnews? Instructions on 'how-to' search PubMed
for specific scientific articles? Joe's lists of articles? Kathryn's
info re nutrition? Nutitional supplements? Surgeries (who, what, where,
why)? Medications? The importance of exercise? The latest scientific
news re pd? Volunteers to compile all this info and put it on the
web.
For those who are semi-web-literate and web-abled:
A place on the various web pages to ask for more help? How to subscribe
to the list? Volunteers to provide that help.
For those who aren't able to access the web:
Volunteers to take the 'newbie' under their wing and provide a positive,
welcoming, nurturing introduction to the list. Make sure that each new
member who posts an introduction to the list is made aware that (s)he
is welcome and valued. That his/her questions and contributions are
welcomed and valued.
Ok...so maybe I got carried away but we could provide an example of
on-line, accurate, up-to-the-minute information for other specific
'diseases' and make even more people aware that they are not alone with pd.
Barb
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Barbara Patterson [log in to unmask]
HSC 2J22 905-525-9140, ext. 22403
School of Nursing
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