It's great to see the enthusiasm for this project and the ideas
people have already expressed. I believe we can succeed at this once
someone volunteers to organize the effort, and also take charge of
the long term maintenance of the documnent, and once the question of
where the FAQ will reside is answered.
As people have pointed out, many good materials already exist on the
net, and from that aspect, some of the work has already been done.
It's just a matter of pointing to it. Should there be a single
starting page containing a master directory with links to existing
and new materials? If so, how's this as a sketch of a top-level
outline (which I hope someone will improve):
I. Parkinson's disease.
A. Symptoms.
B. Diagnosis.
C. Medication.
D. Surgery.
E. Exercise and physical therapy.
F. Diet.
G. Caregivers.
II. Organizations.
A. National and regional organizations.
B. Support groups.
III. Health Care Providers.
A. What is a movement disorder specialist?
B. How can I find one in my area?
IV. Advocacy and politics.
A. Udall Bill.
B. Contacting members of Congress.
C. Links to PD-related political news sources.
D. NIH.
V. Related and general medical topics.
A. Links to other medical resources.
Example: www.rxmed.com
B.
VI. Legal.
A. Employment.
B. Disability.
C. Driving.
VII. Social implications.
A. When/how to tell other people.
B.
VIII. Computing how-to's.
A. PARKINSN mailing list.
B.
Phil Tompkins
Hoboken NJ
age 61/dx 1990
