Print

Print


Hi David.....

FYI... "Frozen shoulder" is related to Parkinson's in 50 percent of
the cases.  It usually crops up just prior to the onset of the
disease.

Initially I had frozen shoulder (OUCH!) on the left side which was
treated by a cortisone injection when I couldn't stand the pain any
longer - about every four months for the last 4 1/2 years.  That
assured me of at least a coup-three months of relative comfort till
the darn thing kicked up once again.

My orthopedist told me there's a standard surgery for frozen
shoulder, however, there's a long, and not-always-good recovery for
those who have PD.  He's strongly discouraged me from  having the
surgery as long as I can stand the pain (and there's times when I've
felt unable to stand it), as in many cases the problem appears to go
away.

After living with this monkey on my back for the last 4 1/2 years,
oddly there actually IS less pain and a longer pain-free interval of
time between injections (YEA!!).

This may be due to the fact I've been getting physical therapy in
order to train the deltoid muscles to take over the functions of the
shoulders muscles (I know I'm not explaining this very well, but
trust me, it IS working).

As for the confusion regarding your meds, that too appears to be a
common problem in the medical community which is why eventually so
many Parkies end up calling the shots on what drugs and what dosage
they'll take.

I suggest, if you haven't yet seen a MOVEMENT DISORDER specialist (a
neuro, but much more knowledgeable about PD then the average neuro),
you probably should at least at this point since there IS the
confusion.

Barb Mallut
[log in to unmask]

-----Original Message-----
From: David Thurston <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Tuesday, February 02, 1999 9:26 AM
Subject: new member


>Hello list members,
>I was diagnosed with PD less than a month ago. I have a shuffle in
my
>gait on the left side and some loss of dexterity in left hand with a
>very very slight tremor. I can live with these symptoms with minor
>adjustment to the way I live. The main symptomatic problem, for
which I
>had sought medical attention in the first place, is a painful
"frozen
>shoulder" with severly restricted range of movement of my left arm.
I am
>told that this is a separate issue from PD, but that the latter's
>tendency to tighten muscles of neck and shoulder could be causing
lack
>of response to physical therapy for the shoulder joint. Therefore
>starting PD medication, why not yet strictly necessary, could
benefit
>this condition.
>I have not started medication yet because of another worry: In order
to
>get a balanced understanding on what was happening, I sought a
second
>opinion from another neurologist. Result: complete confusion. One
>recommends that I commence with dopamine agonist Pergolide, the
other
>(who knows about the other's recommendation) favours levodopa in the
>form of Madopar. Both tell me it is my decision. These are two
reputable
>medical men, when the time comes that I feel I am ready for the
>commitment, which course do I choose? Not so much that, how, as a
>layman, do I choose?
>Dave Thurston
>