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Greetings to all from Roger Naeseth from Sister Bay Wisconsin. I have
been diagnosed since 92, first symptoms were tremor on my right leg
.while at my sister's funeral, latter my foot would get a prickly
feeling. The first neuro I went to said he did not know what I had but
it wasn't Parkinsons, he did all the tests plus MRIs.  He prescribed
Klonopin and Proprandal. I had been doing research myself and thought
I had the symptoms of Parkinsons. I joined a support group who said
try a new neuro, I did and he confirmed I had Parkinsons.  I am 63,
retired from IBM in 1956.  Initially I took no medication, then tried
Artane which seemed to affect my memory, then tried Eldepryl which
made my skin feel sensitive plus at that time the appeared some
negative articles about the drug.  Then Sinement CR was tried which
helped somewhat. I then moved from Illinois to Wisconsin and went to a
neuro (movement and disorders) Dr Nausieda from St Joesph hospital in
Milwaukee. He also is a sleep disorders specialist. He took me off
Sinement Cr and put me on Sinement 4 times a day. This helped my
stiffness I was now experincing and helped the tremor. The dose is
25/100.  I take amantadine 100mg twice a day which also seems to assit
the sinement. Also I take 1  Remoran before bed time.  Helps some of
my sleep problems, I also take a vitamin mixture called NOW, Q10,
grape seed extract, algae Vitamin E, fish oil, green tea extract,
calcium.
Constipation sometimes is a problem, a stool softner twice a day
helps, plus I walk 2 miles a day plus plenty of water. One thing I
discovered is too much fiber can add to the problem as the stools
become more compacted.
Oh, I forgot I was taking Tasmar 200mg 3 times daily till I found out
doing a search about the liver scare. I was taking Tasmar because the
sinement seemed to wear off at the 3 hour mark.  I had been on Tasmar
about 5 months with no noticable affect. I consider myself lucky
because the disease so far is progressing slowly.




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