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Ivan, I've been burned enough by you that I'm not sure how to respond. Usually when someone who I have been angry at comes back to me with the conciliatory tone that is in your post I read it as a olive branch and say let's forget our differences and go on from here. But I'm not so sure here. Regarding your comments: I said that the amount due you was inflated because you spent a week or 2 vacationing as I recall prior to scheduled visit yet you claimed the whole trip (airfare for you and your attendant and I believe more). There were as good or better facilities in New York or Boston yet you chose to go to Miami. While that is certainly your right one wonders whether the choice of Miami was influenced by reasons other than your medical appointment. .In any case I am remembering that I said a year ago that I wouldn't perpetuate issue any more by discussing it an here I go again. Regarding the other issues I'm sure there other gays on the list- but I don't know it because it is not an issue they choose to bring up - just as I don't know for the most part who is Black, Catholic, Jewish or Atheist, bisexual, heterosexual or asexual. You have chosen to make an issue out of your sexual preference and then blame others for mistreating you because of your sexual orientation. Gays are mistreated in this society but you take advantage of the desire people on the list to be accepting of all PWP and turn it around to gain sympathy. I would be willing to bet you do the same thing with your friends in the gay community about your disability from PD. I think that if you really want to get the respect back of the large numbers of people in the group that are down on you right now we won't hear another word about NPF, or anything else that asks others to intervene in your behalf (such as making phone calls to support you to PBS). As others have pointed out there are many on the list that are in your financial situation or have other needs that but very few if any that request the list's intervention (in fact probably not enough do) . Ivan, this is my last response to you regarding these issues on the list.. I am not telling you what to do but I am saying what will be necessary if you are to regain the respect of me and I think many others. Charlie Ivan M Suzman wrote: > On Mon, 1 Feb 1999 11:02:27 -0600 "Charles T. Meyer, M.D." > <[log in to unmask]> writes, in part, > > .... After talking to > >several people I came to the > >conclusion while NPF was not blameless Ivan's claim was highly > >inflated as to the amount that he was > >reasonably due > > Charlie, > > I am not sure what you mean when you say the "claim was highly > inflated"... > > I took the trip to Miami because the NPF staff kindly set up the > appointment. Otherwise, I would never have searched for a CNA and gone > to Florida. From the total trip expenses, I extracted the expenses to > go to the clinic and back by plane with a CNA on 24-hour duty as the ONLY > allowable expenses. These were $2200.00. > . > > > > > >Ivan claimed PBS was discriminating against him because he was gay. > > Charlie, I wondered if my minority status was an element in my story to > find safe caregivers not being shown so far. This might be possible, but > I NEVER stated that PBS discriminated against me! Charlie, > I came to realize that Hilary's wonderful appearance, which I worked > very, very hard to support, took precedence. At least two PWP's in our > midst, Hilary Blue plus Dr. Peter Morabito, each did a very fine job > indeed of representing us. I will represent ALL of us if I am filmed for > an April story. If I am not filmed,. I will still continue to work for a > future cure for PD for ALL of us. > > Being in a minority group has caused me additional caregiver search > stress, still does, always will, but at the same time, I am very grateful > to Dr. Morabito and to Hilary Blue for their courage and their success. > > >When several listmembers wrote > >to him off list stating that they felt that he should stop pushing his > >personal agenda he wrote to > >the list stating that he was getting anti-gay hate-mail which- with > >the information I had I wrote a > >post supporting Ivan- only to find out from the alleged gay bashers > >what they actually wrote. > > Charlie, unless you go through what we go through, your interpretation > of our experience, even with great compassion you always show, can only > be partial. In any case, I am actively trying to repair and build a > strong bond with the two listmembers involved. In one case, I wrote two > private letters and made a phone call. In the other case, I am hoping > that time will heal me from the comments upset me so much. I have > followed Barbara Patterson's advice. > > > >And then when the petition came up you will find my name conspicuously > >absent since I assume the > >City has their side which I would need to hear before advocating in > >any way for Ivan. > > > The City's lawyer has finally begun to negotiate a settlement, last week, > once it became known that the PETITION had arrived, and had filled so > quickly. I have thanked the signers. If you were hesitant, I have no > problem with your not signing. > > The ideal settlement may OPEN the door for other PWP's in similar > circumstances of property tax and sewer lien pressure to get better, > Parkinson's-focussed relief in their towns or cities. > > >The list is full of compassionate people who want to help other PWP's > >who are in need. The list is > >great for that but it can be abused. > > Please , Charlie, I am just like you in wanting to help others. Many of > my posts show this. -- ****************************************************************************************** Charles T. Meyer, M.D. Middleton (Madison), Wisconsin [log in to unmask] ******************************************************************************************