 |
 |
Dear List Family: It seems to me that a lot of picking, backbiting and general grumbling has ascended on this list. When I got here not to long ado, most shared freely, willingly and sometimes quite often. There seemed to be joy and laughter at times, and sadness at a fallen comrade or turn for the worse. Now, it is heartbreaking to see what it happening. I am hesitant to speak because I get usually no answers or I don't feel I can compete with your vast knowledge. Well, I came here to gain knowledge to learn about this disease that has me and I can't get away. The doctors off little not wanting to frighten you or so you don't conjure up the symptoms in your own head. I needed help a few gave me that help and I repeatedly reach to them OFFLINE. I don't see the familiar names of some on the list. And some who join quit within days, volume maybe. But volume of bickering at each other. To think maybe of this as just growing pains or changing to higher level is fine but the basics are gone. What to help each other with this disease that consumes at every turn, taking with it the smallest of our movements, enjoyments, ideas, dreams, hopes, loves, rights, jobs, driving, eating, dressing, I really don't need to go on. We know what it has done. I need to vent sometimes to just be angry. I can't vent at my caregiver or he won't be my caregiver for much longer. My children have there own lives. And there is no support group where I live. My pets (large part of my life) do not like it when I cry and yell so I don't. So, I like to vent, write poetry of my feelings, or just some poems, kid with my buddy Ken and My friend Barb. I want to know facts about PD, and the people on the list. Maybe become a family again. That doesn't mean 3,000 Emails at once. But be happy in the fact that we are in this together, it is lonely out there. The one thing I would like to suggest: On another list I belong to we all have varying backgrounds and problems, some very pronounced. If a "Higher Power" is wanting to be discussed label the Subject line with it ****Warning**** Religion***** then if you don't want to see it delete. This can be done for all kinds of subjects that are not shared by the whole group. Worked for them could work for us.