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Hi everyone,

This is a quest for information, because we are having problems with
doctors and insurance and usually the people living with the problem
(disease) have the latest information. zthe information below involves
several diagnosis so you get the whole picture.

This is the problem - In January, my mother in law was found conscious
but unable to move on the floor in her apartment. Was taken to hospital.
ist diagnosis virus, but was admitted for further test due to inability
to walk, stand or sit.

within 6 hrs of admission, diagnosis was Parkinsin's disease  and
Eldripril and Simimet were started. Diagnosis was made by observation by
the neurologist only - dopamine level was never evaluated. Obviously he
never reviewed the MRI either.

Two days later the attending physician finally got around to reviewing
chart noted that the MRI showed all venticles in the brain
significantally enlarged with fluid except the 4th venticle with
possible aqueduct stenosis. The MRI showed evidence of previous strokes.

They planned immediate discharge since the neurologist was too busy for
the procedures to be performed while she was an impateint. Out patient
spinal tap and possible ventricular-peritoneal shunt was supposed to be
scheduled but wasn't scheduled.

We demanded a second opinion and the 2nd neurologist gave the diagnosis
of normal pressure hydrocephalus and multiple previous strokes. She also
told us that the fluid pressure can cause a parkinson syndrome not
actually parkinson disease.

They demanded that she be discharged immediatly and we had to take her
home. Nylcare refused a referral to a specialist for the tests. The 1st
neurologist refused to perform the tests since he disagreed with the
diagnosis.

Since then her primary vare doctor demanded she be on the meds even when
I explained that she had no symptoms- she told me that the symptoms of
Parkinson's disease can come and go and we needed to get her back on the
meds before the symptoms came back. MY QUESTION: DO THE SYMPTOMS OF
PARKINSON'S DISEASE COME AND GO??

She was on the meds in the hospital and the attending wrote the wrong
dosage on the discharge prescription - so we was off the meds for 10
days after discharge with no symptoms!!!!!

Because her ddoctor demanded, the meds were restarted but no change
noted and her doctor then refused to answer all our phone calls about
medication as well as BP related problems - we decided to stop the meds
- according the the PDR levodopa can cause hypotension and then was
occuring and again Carm has no symptoms.

any replies welcome

 Leslie and Bill