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Hi, My name nancy Mullein [log in to unmask] wrote: Dale, you failed to mention a few other commitments that must be listed on this List. Dale u have take the time to unselfishly worked for a cure for PD. An example of this is our perseverance working for the passage of thaw Dual bill Thank you Thank you for taking the time to call or drop a note when I am extremely ill., taking the time to inform me of the activities . Very tired now , this is an minuet sample of ur dedication to helping others that have PD /PD+, speaking for those who are less able to , focusing on projects that help PWP's a a whole as oppose to being self serving . Ivan take note. Thank you, nancy aka Angel_3 > > Ivan you pissed me off this morning which is no good for my PD. For years > I have listened to the on going soap opera of you life and the never-ending > complaints about the NPF. If you were a man about it and were sincere in your > belief that your position was correct you would have long ago submitted the > claim to the small claims court for resolution. The cost to submit to small > claims court is nominal and I would put the fee up for you if you would get > off this topic. I am not taking sides in the dispute but I do feel that you > are blinded by the mot in your eye. > > Now you are asking us to support your boycott against the NPF. The NPF for > many years has been the largest source of private funds for Parkinson > research. Director Emeritus Nathan Slewett has lead the organization with > tremendous foresight and dedication to finding the cure. Both he and Dr. > Lieberman serve in a voluntary capacity. When President Nixon and Bush halted > fetal cell research the NPF started to Fund research abroad to keep the > research spirit working. The NPF has amassed the largest brain bank available > to all researchers. They recently purchased the largest monkey farm to have an > adequate supply of primates available to research needs. > They have a net work of over 950 support groups and provide materials to the > public and support groups without charge. > > They have stepped up to the plate when development's opened up opportunities > such as: Giving a grant of money in excess of $ 100,000 to Robert Johnson > Memorial Hospital after the gene discovery to purchase a new medical device > that reduced the research from 10 years to 6 months. When Dr. Martha Bream > discovered a new way to take a cloned cell through the blood brain barrier on > the back of a virus the NPF was there with more than 750,000 when the NIH > turned down her grant request. > > There are some in the PD community that feel that the young researcher is > systematically excluded from grants because off an old boy mentality. The > young researcher coming into our field needs research support without being > corrupted by the thoughts of the long time researched who works to be sure his > peer review group will continue his grant for next year. With that thought in > mind the Alliance has teamed up this year to raise funds to support and bring > in new young researchers. > > What are you offering to replace this tremendous effort put forth by the > voluntary and salaried workers at the NPF? All I hear from you is more carping > and more carping. Your comments are selfish and inner directed for your > satisfaction and offer little that could be off benefit to all who suffer but > still work for a cure for this disease. > > Yes I am an Alliance Member and I'm proud to say so. I saw you at the last Pan > Forum and we are about at the same state of the disease but I am still doing > what I can to help by brethren with this affliction. I take personal affront > to a call for a boycott for your selfish reasons and submit my credentials > below to support my position on behalf of my fellow workers and friends who in > the most part work anomously: > > I am a member and co founders of NY PanHandlers a political lobby group. > > I attended three forums in Washington sponsored by PAN and have called on > over 120 Senators or Congressman. > > I am the support group leader in Syracuse. I visited any number of support > groups upon request to promote Joan Samuelson and her advocacy arm. > > I worked on or donated funds to support a number of PD projects such as PAN > video for lobby purpose. > > Participated in the last two Unity walks and my sponsored team raised $ 2,000 > or more each year. > > I attended PAN fundraisers in NYC and NPF fundraiser in Pittsburgh and others. > > I was Invited and accepted offer to join the Alliance to continue to advocate > for Federal Funds. I will travel February to NPF where I will gather with 17 > other voluntary workers to attend a 2-day seminar on fund raising techniques. > > I am organizing the first PD symposium in Syracuse of which I am then > originator and principle organizer. I a sponsoring a fundraiser in conjunction > with Symposium. > > And my legacy to the PD Community when I can no longer donate by skills and > time to the Effort will be THE NATIONAL DATABASE of PD support groups. The > Univ. of Mass has all ready used this tool, which is still in the development > stage. to contact and locate siblings to participate in Gene study funded by > Anthe NIH and several other events one of them is a bike tour sponsored by Robin > > Elliott of the PDF > > And so you see that I am a tireless worker for the PD Community looking to add > something of value rather than tear down those who are trying to help > My Parkinson and me friend. > > Ivan you add a lot to this list and you have ma sympathic friends here. But > you're continued comments about your problem with the NPF diminish your > stature and respect, which you enjoy on the list. > > Now I have said it Its off my chest. I feel better