Hallo, Evrybody!
I'm a new member, from Hungary, and first of all I must say
sorry for my poor English.
I'm 44, and 6 years have slight parkinsonian
simptoms, mainly stifness in
the right arm, speech difficulty, general
slowness, but no tremor. The
progress is slow, but exists. My left side is
normal. I was diagnosed with PD in 1995 and started take Sinemet CR.
Last
year I have changed my neurologist, and the new one diagnosed me with MSA.
Unfortunately he died, and culdn't finish the diagnosis, so it seems not
sure.
I had CT scans in 1992 and 1995, MRI scans in 1995 and 1998,
SPECT scans in 1995 and 1998, and PET scan , but there are nothing
exact on the pictures. The latest MRI and the PET were made in USA, FL. in July
1998. I have seen there a movement disorder specialist, Dr N. Galvez, at
Cleveland clinic Florida, who diagnosed me with striatonigral
degeneration. Since than I take Mirapex in combination with L-dopa).
I
was examined in Neurology Clinic SOTE Budapest, in October 1998. There was
told me, that my disease is most likely common PD because of the good response
to L-dopa. I had also an ENG-EMG test, which could't show any
autonomic failor. They prescribed me Madopar 4x125 mg, and Mirapex 4x0,75
mg. I have high blood pressure too, take once a day 120 mg Isoptin SR
(made by Knoll AG, Germany).
My condition is normal, but not good, and I
confused, what I really have,
and how it will progress?
Hungarian doctors
usually do not try to find an exact final diagnosis ( PD,
PD+, MSA ), because
they say: the treatment(medications) is the same. But the future life
perspectives are not the same, and I'm too young to wait,
doing nothing. I
don't understand, what was the reson of thinking of
MSA.and
SND....
I am the sales manager of the PC reseller company, and I sell Packard
Bell products for big firms and the government. This job needs activity, good
communicattion, and there is a lot of stress.
I have two children, daughter 20, son 14. I hope
to have at least 15 active years.
My main interests:
- research and practical news
on diagnosis and treatment of PD.
- would be great to find a
(or some) member(s), speeking hungarian...
- any idea to get Mirapex
regulary, for reasonable price.
This drug is helps me, but not available in Hungary, so It is difficult
for me to have it permanently
Oh, sorry, I am afraid, I wrote too much at
first.
Best regards, and good luck to all of
You.
Sandor