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Dear Billie, This message was on the list about a week ago. I sent an email asking for literature and got three very informative manuals in just a few days. They are free! Hope this is a help to you. Jennifer Smith > Dear List Members, > > As I've posted in the past, NPF's literary task force has been working over > the past several months to update the Foundation's literature. > > In the last 6 months we have published the following NEW literature > available free of charge upon request. > > 1. Parkinson's Disease: Nutrition Matters > 2. Parkinson's Disease: Speaking Out (deals with speech and swallowing) > 3. Parkinson's Disease: Fitness Counts > > "Fitness Counts" is the most recent addition as it was completed only a > month ago. We received great responses to the previous two handbooks, but > have not heard much about this new one. We are anxious to hear your input, > please feel free to email, Susan Imke our National Patient Service > Consultant at: [log in to unmask] > > We are currently working on a new medication manual which should be > available in less than 2 weeks. > > In addition, we updated the NPF Parkinson Handbook which gives an overview > of PD for the newly diagnosed and "Patient Perspectives on Parkinson's, a > series of essays by Sid and Donna Dorros has been update as well. > > To place an order for literature, please email Andrea Jones in our > fulfillment department - [log in to unmask] > > Best Wishes to you all, > > Melinda Brown > Public Relations Director, NPF > Billie Cook wrote: > Gee but it's sure nice to know somebody out there cares....many thanks. > It's hard for me to open up re my PD. Was diagnosed and confirmed > 3-1/2 yrs ago but I never really accepted it 'til recently. Last summer > I got "a bee in my bonnet" to stop eldypril. So I did...big mistake. > Restarted in about 10 days and added sinemet.My system could not > tolerate sinemet(vomiting,rapid weight loss); switched to parlodel > (small dosage).So far so good..now up to 1/day and will increase dosage > next week. > Right now am having problems with: > loss of balance, slow moving & eating,,hoarseness and difficulty getting > words out,swallowing, excess saliva, no taste,blurring of > vision(reading,watching TV or just sitting),walk in small fast steps, > posture and don't sleep (about 2-3 hrs at night).There are a few more > but don't happen regularly. > My meds are (all not related to PD): > eldypril,parlodel,doxepin,calan > SR,lasix,lopressor,ultram,prozac,prilosec & xanas(sm.dosage). > Don't know much about PD but want to learn all I can. Enjoy reading your > messages. Let me hear from yawl now. > > Billie Cook